Hashimotos disease

rellypoo
By rellypoo Latest Reply 2013-06-06 16:09:18 -0500
Started 2011-08-29 19:00:36 -0500

Hello to everyboday. I have just been told that I have severe thyroiditis and need to see my endo to discuss the thought of having my thyroid removed. I was told that my immune system is not recognising my thyroid as a gland and is trying to destroy it (hashimotos) it is making me quite ill so I am thinking about it seriously but I am a bit hesitant. I would like to here from someone that has had the surgery so I can get an idea of what to expect.


31 replies

Type1Lou
Type1Lou 2011-09-07 10:03:56 -0500 Report

Dear Narelle, Thyroid problems seem to go hand in hand (or is that gland in gland?) with diabetes. I've been taking a synthetic thyroid hormone since sometime in the 1980's, after I was diagnosed with hypothyroid and about 10 years after my diabetes diagnosis. A malfunctioning thyroid could certainly make you feel awful. I hope you find out more with your endo visit on the 19th. Please keep us posted!
Hugs,
Lou

MoeGig
MoeGig 2011-08-30 21:25:55 -0500 Report

My thyroid doesn't work either and have been taking synthetic for ten years. Easy solution.

RAINDANCER1950
RAINDANCER1950 2011-08-30 18:39:20 -0500 Report

HEY GIRLFRIEND…WORKED WITH A LADY , SHE HAD HER'S REMOVED BECAUSE OF CANCER…HAD TO TAKE MEDICATIONS…BUT SHE' SAID SHE WAS BETTER OFF AFTER THE SURGERY THAN BEFORE…BECAUSE HER ILLNESS HAD CAUSED HER THYROID TO BECOME NON FUNCTIONING …SO , SEE YOUR DOCTOR…AND READ UP ON THE SUBJECT…WE ARE FOLKS OF THE INTERNET AGE…WE CAN LEARN ANYTHING…AND I CERTAINLY, WILL BE SURE TO PUT YOUR NAME AT OUR TEMPLE'S PRAYER ROLL…I AM LIVING PROOF PRAYER'S ARE HEARD AND ANSWERED…GOD BLESS YOU…AND WE HERE , ARE ALL SUPPORTIVE OF YOU…BRENDA

grandmaducky
grandmaducky 2011-08-30 17:22:44 -0500 Report

yes if you have the surgery you will take med for thyroid for the rest of your life i have thyroid problems and take meds for it when they finally dg it i felt much better on meds but i did have to change med twice to fine the one that work for me best so if you take meds and still dont feel okay you might talk to doc about trying another med i am hypothyroid i feel so much better not sleeping 14-16 hours a day now not getting up and feeling like i didn't sleep at all i feel great now

berrykins0
berrykins0 2011-08-30 13:13:24 -0500 Report

sorry to hear your having alot of problems with your thyriod being attacked by your munnine system. like i said before i have graves diease i know what is like to have your munnie system attack your thyriod its a little different when its overactive from it being attacked. it gets attacked in a different spoy mine does then your does. thats why yours it being destroyed instead of overactive. i forget exactally where mines being attacked. but its strange how it can be attacked in 2 different ways. i'm thinking about you. i feel bad for you .just hang there it will be alright.i hope you don't end having to take it out with sugery. hope they can find a different way to solve the problem. i was to if mine has to gets worse i was told they could use radiation to destroy mine instead of sugery. i would have to take pills again but for rest of my life.

"tickled pink"
"tickled pink" 2011-08-30 13:01:18 -0500 Report

I hope everything will be o.k. I have underactive thyroid and sometimes i feel lowsy. I will be praying for you. Let us know how it goes.

lorene1212
lorene1212 2011-08-30 12:52:54 -0500 Report

I really hope everything goes well with you and I am thinking about you rellypoo! We are here for you. Although I have no idea about this subject but just wanted you to know your being thought of.

flipmom
flipmom 2011-08-30 12:32:54 -0500 Report

just wanted to say goodluck and keep us posted… i hope n pray everything will turn out well for you.

byrun
byrun 2011-08-30 12:27:07 -0500 Report

I am sorry that you are having such troubles, Narelle. A difficult situation…a tough choice. I wish you well, my friend.

lissy1
lissy1 2011-08-30 06:40:16 -0500 Report

So sorry to hear this! My daughter was diagnosed with Hashimotos at the age of 20. She takes synthroid and gets her blood checked every 3 months. What meds have you been taking? How long have you had Hashimotos?

rellypoo
rellypoo 2011-08-30 19:00:23 -0500 Report

I am on thyroxine whicch are not making any difference and I have been diagnosed since christmas 2010

lissy1
lissy1 2011-08-30 19:14:46 -0500 Report

I'm so sorry you're going through this. Please keep us all posted on what the Drs and you decide to do. Do you see an endocrinologist? We're all behind you and hoping and praying for your health

rellypoo
rellypoo 2011-08-30 19:31:42 -0500 Report

Yes I do see an endocrinologist he is irish and has a great sense of humour which makes you more at ease when you see him. He is based in Hobart which is 4.5 hours away from here but he does travel down here every 6 months. I will let you all know what I have decided to do and thank you for caring.

wolfmom41
wolfmom41 2011-08-30 01:36:35 -0500 Report

So sorry to hear of your troubles! My sister had her thyroid gland removed about a year and a half ago (she's in her late 30's) after spending 8 yrs running around to various doctors and clinics around the country (including Mayo Clinic & Cleveland Clinic) trying to figure out why she was so sick and tired ALL the time. She went from being incredibly active (think mountain biking, rock climbing, AND teaching KIndergarten, while raising 2 babies 10 mos. apart!) to sleeping all the time, quitting her job and having to hire someone to help with her children's care! Finally, after all kinds of mis-diagnoses, she was told removing her thyroid would "probably" solve her problem. I was reluctant to have her do it, as I learned in nursing school (I'm an RN) that the surgery is very risky, has a long recovery, etc. WELL…that was years ago (I've been an RN for about 20yrs!). I don't work in that field, so I only had the info I'd gotten in Nsg, school. My sister, however, was to the point of really not caring about the risks, etc. She said that as she had no life and was so absolutely miserable, the risks of surgery were not a concern for her. Okay…I'll shut up and tell you the results…she is SO HAPPY she had the surgery! She said the pain wasn't too bad ( a really bad sore throat and neck for a few days) and her recovery was incredibly quick. She has a very small, barely noticeable scar on her neck now. Her life has improved a lot…not 100%, but definitely 80-85%…and for her, she's thrilled! The surgery was very quick and nothing like I'd learned way back in school. With the improvements in micro-surgery a thyroidectomy is a piece of cake these days! I would HIGHLY recommend getting the surgery if you're even close to being as miserable as my sister was. I would recommend, however, getting a second opinion to make sure removing your thyroid is something that would work for your personal situation (it's always good to get a 2nd opinion on ANY medical diagnosis anyway!!)! Well, sorry for the "book" but I hope I helped you and wish you the absolute very best!!!!!!

rellypoo
rellypoo 2011-08-30 02:01:56 -0500 Report

Thats exactly how I feel tired all the time and very ill I am thinking seriously about saying yes to surgery. Like your sister said this is not a life.

wolfmom41
wolfmom41 2011-08-30 06:41:06 -0500 Report

Well, like I said, I was so surprised at how quick and not nearly as painful the whole thing was for her. Naturally, it took a while for them to regulate her levels with replacement thyroid hormone, but once that was done she really has felt a difference. She's active with her kids again, doesn't spend any time in bed and feels really good most of the time. Once in awhile she'll have a "droopy" day,but like she says it's nothing like before when getting up to go to the bathroom was just too much work!!! LOL!

VickieF
VickieF 2011-08-30 01:16:11 -0500 Report

So Sorry that you are having such a bad day. I have not had the surgery but have checked up on it due to having a thyroid issue and my Sister having Graves disease. I understand that in having the thyroid removed you would have to take pills every day for the rest of your life. I would not presume to tell you what to do and can only tell you what I would do. I would have it removed because I feel that as sick as the disease makes a person is awful. I would want the chance to feel better even having to set alarms to remind me to take meds at certian times. I am as I am sure you are worth having the best life possible. My Sister waited until it is to late to have the surgery to remove hers. Her heart is to damaged now and she lives life on a day to day basis. I know it is your life and your choice So I will say May God Bless You and I will pray for you.
Vickie

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