Neuropathy

petals
By petals Latest Reply 2011-09-12 19:30:37 -0500
Started 2011-08-20 00:58:24 -0500

Just found out a couple of weeks ago that I have neuropathy in my feet and legs, so any advice would be helpful. Does anyone else on here have it and how do you deal with it? Thanks


13 replies

icudeejay
icudeejay 2011-09-11 19:02:14 -0500 Report

My legs mostly my right leg is always in pain, somedays like today intense. Other days not so bad. My doc wants to test for neuropathy she also might put me on Lyrica for the pain. I just know I hurt there is tingling when I touch my leg. Doc has a few things she wants to test but neuropathy is one of them.

Abby888
Abby888 2011-09-09 19:22:23 -0500 Report

I was diagnosed with diabetic neuropathy in my feet a couple weeks ago. The doctor basically said to me "if you don't get your blood sugars under control you will eventually lose ALL feeling in your feet". That scared the crap out of me. My endocrinologist told me that damage that has already been done can not be reversed. I can just prevent further damage from occuring. So I'm carb counting (which I wasn't doing before) and trying to walk when I'm feeling ok.

petals
petals 2011-09-09 23:02:39 -0500 Report

Sorry you have this! I was counting carbs, but got lazy! Have started back. My doctor told me the same thing. What I don't understand is my A1C was 5.5, so how can my blood sugars be that high?

jayabee52
jayabee52 2011-09-10 02:06:38 -0500 Report

All I can say Dee is you might have had some mighty powerful lows you came through since the A1c is an average of your BG numbers for 90 days or so.

My bride Jem had BG levels which were at times 300 to 400, yet her A1c was only 6.5. When asked her endo said much the same thing. She must have had some mighty low, lows to compensate for her highs.

petals
petals 2011-09-10 07:49:39 -0500 Report

I never thought of having lows to counter act the highs, I will talk to my doctor, thanks James!!

Dixiemom
Dixiemom 2011-08-20 16:14:27 -0500 Report

I was diagnosed with peripheral neuropathy ten years ago, way before I became a diabetic. I was told at that time we can't cure it but can make you comfortable. My problem is with the myelin sheath that covers the nerves. In layman's terms, the covering is wearing off and because of gaps the signal from the brain doen't get to the feet. It does affect the muscles, making them weak. I had the usual symptoms of tingling and now the cold purple feet. It has also affected my balance. I fall without any warning. One minute I'm standing and the next I'm on the floor. I use a walker in the house but switch to a wheelchair when we go out. I feel a whole lot safer in the chair then I would using a walker in unfamiliar surroundings. I am on Cymbalta and that has taken away the pain and tingling.

jayabee52
jayabee52 2011-08-20 15:25:51 -0500 Report

Howdy DeAnna!
There are a lot of folks here on DC who have neuropathy of various kinds. I am one of them. My neuropathy is mainly peripheral neuropathy and I feel burning from my knees down to my toes. I also have tingling from my elbows down through my fingertips, and also tingling in my lower torso, particularly my groin area.

I have tried many things to deal with the neuropathy. I have taken neurontin(gabepentin) which didn't work for me, but for others it has worked. I am now on an anti depression med called Nortryptelene which may be helping a bit, so I continue with it. Others have gotten relief from Cymbalta.

The question of whether Neuropathy can be reversed or cured is still an open one in my mind. Some say it can be, others say one is stuck with it once it develops. I am praying that it is the former opinion.

Some say that keeping one's BG at a "normal" level for a long period of time may reduce or completely remove it, so I am keeping my BGs at a normal level. I am also told that taking Alpha Lipolic Acid (ALA) can help with it. Maybe it is wishful thinking on my part, but the regimen I am on seems to be reducing the intensity of my feelings of burning pain. It has not yet eliminated it completely.

You can read the other discussions about neuropathy on DC here: http://www.diabeticconnect.com/discussions?qu...

I pray you can find something that works for you.

Praying God's richest blessings shower on you and yours

James

BTW: like your new pic!

petals
petals 2011-08-21 12:17:02 -0500 Report

Thanks James, for all the info. I have peripheral neuropathy , from my knees down. Starting to get some tingling in my hands. I am taking neurontin right now, haven't been on it long enough yet to know if it's going to work or not. Trying to keep my bg normal. I have noticed if I eat something like take out food, or something greasy, that my feet burn more, is that common, or have I lost my mind!! I know that I shouldn't be eating that crap any way, so only subway if I have to eat out, or some place where Ican chose healthy foods. Glad you like the new pic. Blessings to you my sweet friend.

jayabee52
jayabee52 2011-08-21 17:46:44 -0500 Report

I don't wanna be sweet! That's why I control my BGs! LoL! (sorry couldn't resist)

I have not noticed any effects like you mention about take out or greasy foods. But we all are different, so I don't doubt that you may be experiencing that. I don't think you've lost your mind. ( My MIL had a poster in her home "of all the things I've lost, I miss my mind the most" LoL!)

I rarely eat out anymore — or not as much as I used to.

I am thinking of asking my Dr for cymbalta for the pain. Would be so nice if we could find something that stopped the pain!

petals
petals 2011-08-21 19:36:04 -0500 Report

You always make me smile! Yep, we are all different, if not that would be pretty boring!! I am cutting out the eating out from now on. Yes, something for the pain would be awesome!! Hugs, Dee

Next Discussion: The joys of Metformin. »