What is hard about having diabetes?

By Nyu-chan Latest Reply 2012-02-11 14:44:30 -0600
Started 2011-08-14 19:23:44 -0500

That is my question. I am managing it well, but still need to know some things. The only think I hate about diabetes is taking Metformin. I don't know why though, but I don't like it very much. So, I want to know from you. What is hard about having diabetes?

23 replies

kristy40 2012-02-11 14:19:41 -0600 Report

what is so hard about Diabets?is the Med and checking my suger and the way you have to eat.there is so much to learn about it.my feet burn all the time from mine to me ever thing is hard about it.when others are doing things that you cant do becouse of your Diabetes.

jayabee52 2012-02-11 14:44:30 -0600 Report

Howdy Kristy! Welcome to DiabeticConnect! Sorry you qualify for inclusion into our little family but since you do I'm glad you've chosen to hang out with us.

Yes diabetes IS hard. Taking proper care of oneself is hard if one has not been used to it. But I want to encourage you, that with time, and with learning about self-care with diabetes, it should become easier.

I have chosen to modify my meal plan so that I can do without diabetes meds of any kind. That means I am quite limited in my food choices but it is worth it to me. It does mean that I live a healthier life than other folks who don't have diabetes.

For me it is worth doing the hard things, and it becomes easier as I get used to them. I manage my Blood glucose (BG) levels and keep them close to the "normal" range most of the time, and I have lost 65 lbs in the past year and my last A1c was 5.5. If you'd like I could share what I do with you.

Blessings to you and yours


Young1s 2012-02-11 14:03:20 -0600 Report

I accepted the fct that I'm a diabetic really quick so that wasn't the difficult part. It was the time it took adjusting to my new meds because they didn't seem to be working at first. There was also the numerous doctor visits; went from seeing my doctor maybe twice a year to practically every other day. Which was a good thing, I know, but it took some getting used to. My grocery shopping trips became twice as long, as I learned to really read labels and make better food choices. And I absolutely hated testing and taking my insulin because I don't like needles of any kind. None of this is a bother to me anymore.

TsalagiLenape 2012-02-11 09:42:07 -0600 Report

I believe the influx of information you have to learn all at one time. Feeling scare, frightened, and alone. Needing help and hugs all the while. Wondering who wont mind being there for you. Alas I have no one nearby thus is my life.

dwoodyr 2012-02-11 08:06:33 -0600 Report

and metformin made me live in the bathroom.. couldnt take it. anyone else have that problem?

dwoodyr 2012-02-11 08:06:05 -0600 Report

i recently had a disease that primarily happens to diabetics who are out of control its called osteomyllitis. its an infection in the bones which is a major contributor to amputations. i spent 12 days in the hospital and the next six weeks getting intravenous antibiotics to save my finger. i had to go to hospital to get medicine, once a week, blood tests once a week, the dr once a week, iv supplies once a week, home health care once a week, 7 days a week a 45 minute home iv treatment, and most of the iv at home can be twice a day for two hours each , i was lucky, and working two jobs. i had an out of control diabetes a1c test due to my taking poor care of myself. and had an a1c over 10 .. now its in the lower 8 area and its still coming down.. i hate always watching my food intake i hate having this disease, and i hate almost everything about it … im not alone i know… but its not a disease i would have picked it is constantly ravaging our bodies. i hate that people blame us for having it.. anywzy i dont know how old you are or how long you have been diagnosed but all i can say is take good care of yourself, complications like losing your body parts , eye sight, kidneys, etc high blood pressure, and heart attacks are just some of the lovely problems of this awful curse.

jayabee52 2012-02-11 10:39:11 -0600 Report

Howdy, Woody I am sorry to hear that Woody. WELCOME to diabeticconnect!

On the other hand diabetes helped me to get my act together health-wise. Yes I do have many complications and some of them are life threatening, debilitating, embarassing and painful. But I was one who abused my body by not taking care of it and working 2 and 3 jobs at a time.

Now I am disabled and use the time to take care of myself, which I didn't do before. It has made me more aware of what I put in my mouth too.

Great that you are getting your A1c down, please keep up the good work.

Blessings to you and yours


JSJB 2012-02-11 05:53:33 -0600 Report

I guess it would depend on how bad you have it. I was prediagnosed in september and have been on Metformin twice a day and Glipizide once a day. I am also taking Amlodpine/benazepril once a day for high blood pressure. I have no side affects from the pills. The only difference in my daily routine is sticking myself to check my blood sugar. I did lose a lot of weight which I was trying to do and I am eating healthier. I guess it is getting use to living a different life style before getting the D.

2011-08-15 23:12:06 -0500 Report

I never had any side effects w/Metformin. But w/other drugs, Glipizide, Actos, (just to name a couple) have all given me weird side effects. (extremely low b/s.)

Nyu-chan 2011-08-18 18:25:43 -0500 Report

What are the side affects of Glipizide? I that too, but I don't notice any.

2011-08-19 21:41:38 -0500 Report

The one so called major side affect of Glipizide, is that it could cause you to into a hypoglycemic mode.

margokittycat 2011-08-15 21:32:55 -0500 Report

Things I hate about diabetes taking 4 shots a day on a good day because I am allergic to lond lasting insulins and it really sucks on a bad day because I could take anywhere from 6-8 shots. Having to get up or stay up every night until midnight to take my last shot. Poking fingers 8 times a day and then poking myself with needles to take the shots. Not being able to go to the bar and drink with friends I am always the DD because alcohol lowers my BG #'s as to it will normally increase a diabetics BG #'s. Not being able to take my granson out to have ice cream everyday in the summer time and him asking why grandma isn't eating ice cream with him.

I did not have a hard time adjusting to it as they diagnosed me before I was ten. But growing up and not being able to go to birthday parties or have birthday parties because I could not have the cake and ice cream sucked. Not being able to go trick or treating and my birthday being 4 day's before halloween my favorite holiday of the year really really sucks.

Thankfully I have had no other medical conditions arise from being diabetic for 30+ years thank the lord.

Get bitten by insects really stinks got bit 5 weeks ago and am still ill from it and am going back to the doctor next week to have it looked at.

There are many reasons to hate diabetes, but there are many many more reasons to thank GOD I am still here and I have friends and faily who love me and care about me and do everything they can to help me with the desease.

Jim Edwards
Jim Edwards 2011-08-15 12:03:59 -0500 Report

Metformin…The stuff that smells like fish left in a car on a hot summer day. Why wouldn't you like that? LOL. The thing I don't like about having diabetes is that there are things that upset my BG #'s a whole lot, like some OTC medicines. And there are things that I don't think should shoot is so high that do, like a cup of ice cream, a serving of mashed potatoes, corn, baked potato and more. Oh and my main snack for years has been hard pretzels…hard for me to give them up.

2011-08-19 21:56:06 -0500 Report

Your Metformin must be made by a different pharmaceutical company. Cause in the 16 years that I've been on it, mine has never given of such a strange order. And that's even after leaving it in my trunk (in the sun) for a few days.

GabbyPA 2011-08-15 08:37:24 -0500 Report

What is hard for me about having diabetes is changing my habits that I have had for nearly 50 years. Those things are hard to change and when I am concentrating on it, I do well, but when I get lazy, I slip back into old habits. Unfortunately, most of those are not good ones. LOL

jayabee52 2011-08-15 00:04:37 -0500 Report

Well, Carrie,
I had a lot of emotional problems as a result of diabetes. I had bouts of anger, and I'm normally pretty calm and cool guy, I have had a lot of problems with depression. I had been a bit depressed throughout my life, but Diabetes ("DM") seemed to amplify the depression. I didn't want to deal with the DM and so I didn't. I did that until my wife at the time threatened divorce, I got with the program and took care of myself, but that started a marital problem.

She didn't divorce me at that time, but it started the seed growing which blossomed 3 yrs later into a nasty divorce, and my diabetes was a part of the mix of problems she listed. Divorced out of a 25 year marriage which produced 3 sons!

And then the complications hit me from the time I ignored my DM.

I had ministrokes from a thickening of my blood in my brain caused by DM. I was disabled from doing work I enjoyed and I had no income and no insurance for a while

Then about a year after I was disabled I collapsed on my bedroom floor for 5 days in a semi-comatose state. When I was found I was taken to ER and told my kidneys had shut down and I would need dialysis. They took me off metformin (which I suspect was involved in weakening my Kidneys) and they put me on insulin. Because I now had end stage renal disease I was now officially disabled and received disability income from Soc. Sec. and medical insurance. But it wasn't enough to pay my bills so I had to go through bankruptcy (which I hated) to get a fresh start.

While I was on dialysis, I was really depressed. I was "down in the basement — digging holes". I saw no hope for my future for any companionship, no joy, no fun in my life. No woman who was worth having would even glance my way, or so I thought. I talked to the dialysis clinic's social worker and laid out my thoughts of stopping my dialysis treatments and let my body fill up with poisons again and let the disease take me. Social worker said that she understood, that nobody'd blame me if I took that course.

Obviously I didn't take that course, as I am writing this to you about 7 years later.
I chose to continue because of my 3 sons. I didn't want them to get a bad example from me WHEN things in their lives turned bad for them. If someone lives for a while, eventually that someone will have a patch of rough times. I didn't want them to see a dad who took an easy exit in one of his rough times.

I feel that God blessed me in that decision. What I thought would be a lifetime of dialysis treatments, only lasted for 10 months. My kidneys started working, not 100% but well enough to discontinue dialysis.

What is more, the fact that I had been on Dialysis worked to my advantage with a certain blind lady. She had a friend scout for possible romantic partners or friends on Dating4Disabled.com Lori (the friend) sent my profile to "Jem" telling her "he has kind eyes" Jem read my profile and saw I had been on dialysis but was no longer on it. Since she had diabetes and kidney problems and was on dialysis herself. She was intrigued that someone came off of dialysis. So even though she didn't want a long distance relationship (neither did I, and we were 500+ miles apart), she emailed me, and I responded to her and we eventually fell in love. I moved to be with Jem and married her. She was an EXCEPTIONAL lady. And she thought me to be an exceptional fella. She was definitely a blessing to me. She passed from this life in July 2010. But even though I grieve her loss, her being in my life gave me something wonderful. I am no longer having problems with depression.

Something else happened while Jem was with me too. I found diabetic connect, somehow in some search for something Jem wanted me to look up online. On DC I learned a lot about diabetes and other medical problems. I also began to realize that my diabetes wasn't as severe as others. I realized that the insulin dose I take was a "baby dose". and that meant my pancreas though weak, was putting out enough insulin to cover a minimal amount of carbs. So I decided to experement to see if I could devise an eating plan to control my DM without the need for meds. The experement was a success! I have been following my plan since Feb 2011. I have kept my BG levels at or near "normal" levels. My May A1c was 5.5 and my weight has dropped about 50 lbs, without a lot of stress or a lot of exercise.

I still have diabetic neuropathy which burns from my knees to my toes it is painful and irritating, but it doesn't bring me down.

My kidneys are now declining again, and I will need to go back on dialysis very soon. But even that doesn't bug me now. Maybe the dialysis will restore my missing stamina, as it did my first go-round.

So at first my life was really messed up by my diabetes and my reaction to it. Now it is not a joy, to be sure, but it's not all that bad either.

I pray you will continue to have no further problems than not liking your metformin. Blessings to you and yours

James Baker

jigsaw 2012-02-11 08:07:10 -0600 Report

Interesting story in many ways. I think there is something here & worthwhile for everyone. Thanks James!