My 3 year old daughter was recently (6 weeks ago) diagnosed with type 1 diabetes. After the initial hospital stay, IV fluids and training for my wife and I about how to check BG levels and give insulin shots we have had to constantly adjust dosages down. So many lows, then highs, sleepless nights etc..
We were told initially about the honeymoon phase where her pancreas has recovered a little after initial treatment and is still producing insulin, be in insufficient amounts and seemingly somewhat sporadically.
One of the first things that came to my mind was that I, as a parent, need to try and stop whatever is happening that is killing my daughters beta cells to preserve as much function as possible. However, it seems that most of the doctors that we talk to are just interested in the usual treatment plan.
I read of a clinical trial that was done using Interferon alpha (I think this is an auto-immune suppressant which is used for HIV/AIDS, Hepatitis B and C) to prolong the honeymoon phase.
Does anyone have any thoughts on prolonging this honeymoon phase? How long did yours last? I've read it's typically about 4 months to 2 years? Is there any hope for this?
I don't want to drag my daughter through test after test or blood draw after blood draw, it's hard enough to get the finger pokes and injections but I also don't want to find out in a year or two or five that if I had done X,Y, or Z then I might have been able to stop to total destruction of my daughters insulin producing cells.