Type 1 and 20 years old

riquelskyy
By riquelskyy Latest Reply 2011-08-02 01:23:12 -0500
Started 2011-07-29 11:27:35 -0500

I'm type 1 and 20 years old and I need some emotional support. Please help.


21 replies

keek
keek 2011-07-30 23:25:54 -0500 Report

Hey Riquel,
I am also T1. I was diagnosed at 15, which was 16 years ago. I will offer any support to you that I can. Let me start by saying that it is really tough, and it sucks. It is okay to feel pissed. I know I did. I am the only T1 (or diabetic!) in my family, and I didn't have a lot of guidance to start out with. However, I learned over time that it gets better. You don't have to give up everything fun/good to eat. You do have to learn to count carbs and to check your sugar often. Talk to you doctor about using an insulin pump. If you have health insurance, it should be covered. They usually are for T1.

I have found that even though many people around you don't know what you are going through, they do care. You might have to tell them what you need. For example, I used to have my mom give my shots for me when I felt like I just couldn't stand doing one more injection. I also went through a phase when I didn't want my parents to EVER question what I was eating (typical teenage angst) and telling them what I needed them to do to support me was helpful.

My last bit of advice (for now) is to try to see your glucose readings as information, simply a tool. The number tells you that you need to exercise, take insulin, take in carbs… it is not a judgement. It may sound silly, but a lot of people let poor numbers get them down. Don't fall into that trap. I know from experience how detrimental that kind of skewed thinking can be.

It is a process, and it gets better.

Keek

anderson74
anderson74 2011-08-01 20:23:45 -0500 Report

hey Keek , i really enjoyed reading the advice you was giving to Riquel. i also need some support. i have been diagnosed with T1 it is so hard tryin to count the carbs along with trying to watch what i eat far as remembering to check my sugar before and after every meal. when you don't have any support along with not so good advice it makes you feel like giving up along with not caring reather or not you taking your meds,eating like you suspose to or exerciseing.so thank you for the advice

jayabee52
jayabee52 2011-08-02 01:23:12 -0500 Report

Howdy Anderson! I know you addressed your post to Keek and she had answered you, but I wanted to add my own 2 cents.

Coming to a website like this can be very intimidating. There are a lot of people who SEEM to have it all together with regards to their diabetes, and maybe they do NOW (and maybe not so much as it seems). Some of us here have been struggling with this monster for several years, some almost their entire lives. But all of us had to start out controlling our diabetes by taking baby steps. (just like when learning to walk).

We each had to learn what best worked for us. We each had to battle the "why me" feelings and questions, we each had our struggles with support, and struggles with feelings of denial and depression and anger and not caring if I lived.

I want to be the best example I can be for my children and grandchildren, for they may well be afflicted in the same way in the future. I also want to be there when my grandchildren are born, and married and enjoy my great grands if possible.

I had problems like you mentioned, but have finally gotten to the place where I finally got serious about what I ate and my numbers got better. (I am type 2, but I believe my experience may be of value to type 1s also).

Yes, it is my experience life does get better with diabetes. It either gets better OR it can get a LOT worse. And as Keek mentioned, it DOES feel better having your blood glucose numbers under better control.

keek
keek 2011-08-01 20:37:19 -0500 Report

They lifestyle changes get better with time, but it is a big adjustment. For me, the attitude shift proved to be harder, though. Where do you keep your meter? If you always eat at home, try keeping the meter in the kitchen so you won't forget to check. If you have more than one, keep one in the kitchen and carry the other on with you. After a while, it will become a force of habit. Also, try to think of checking your sugar as a way to make you feel better…
I know EXACTLY what you mean about not caring… but it catches up with you. If you want to know about the scary results of not caring, I can tell you stories, but you let me know. I don't think scare tactics are the best way to help new diabetics so I will leave that choice up to you. I don't know how long you have been diabetic, but I know that having my blood sugar under control makes me feel sooooo much better. I hate the thirst, lethargy, irritability, dry eyes, rapid heart rate and extreme fatigue I felt before I was diagnosed and my sugars were sky high. I try to think about that (and also the long term damage) when I am having a hard time coping.
Remember that you won't be perfect at managing your diabetes. It takes time to get the hang of things. Don't beat yourself up if you miscalculate your carb intake. Keep going through the motions and you will get better at the process.
Feel free to send me a message if you have questions, want to vent…
Keek

MelG
MelG 2011-07-30 22:22:12 -0500 Report

I am 45 and was diagnosed 1 year ago with type 1. It is very hard to stay on track all the time. Like anything else you will have good days and bad. Try to be kind to your self and remember that even if you blow it, you can immediately start back and do the right thing. Hang out with people that understand your limits and a true friend will join you for a cup of tea instead of beer or a veggie plate instead of chocolate chip cookies. It is hard for everyone, do not suppress your feelings, acknowledge them. Just remember that each day is a new day with new challenges and one of yours each day will be blood sugar stability.

wes69
wes69 2011-07-29 23:25:28 -0500 Report

I am also type 1 so I can relate to you…I was just diagnosed about 6 or 7 weeks ago. If you ever wanna talk about it feel free to send me a message.

riquelskyy
riquelskyy 2011-07-30 22:29:12 -0500 Report

I just feel like no one will take the time to understand me.

jayabee52
jayabee52 2011-07-30 23:48:21 -0500 Report

Several type 1s and type 2s have reached out to you riquelskyy. I am wondering why you might feel that way here. Have you taken up the outstretched hands of fellow Persons with diabetes and opened up to them, maybe even vented to them either on the boards or in an email?

I have sent you an friend request but you haven't responded yet. You have to be a friend to email people. Try accepting and requesting friends and then email your friends and tell them how you are feeling. I know that if you email me I will pay attention to you. There are a LOT of friendly people here who know all about problems, both physical and emotional, that People with diabetes have.

I know for a certainty that Dr Gary (look him up and invite him to be a friend) would be willing to talk to you because he is trained to do that (he's not a MD, he's a counselor) I have seen him reply to some folks on a board posting who are really depressed, and IMO he answered them very well.

Do you want to feel hopeless & helpless for the rest of your life? I used to feel the way that you seem to, so I know. Please take some action to get some kind of help. My feelings of depression didn't get better until I took action to get some help.

riquelskyy
riquelskyy 2011-07-31 12:45:45 -0500 Report

Sorry if I offended you. I am getting help thank you and I'm talking about the people around me such as friends and family. Sorry if you took it the wrong way

RAINDANCER1950
RAINDANCER1950 2011-07-29 21:19:26 -0500 Report

DEAR FRIEND, I AM A TYPE 2 , HOWEVER, I HAVE SEVERAL RELATIVES WITH TYPE 1…MY COUSIN, LINDA, IS 47 YR. OLD, AND WAS , AS FAR AS THE DOCTOR'S CAN SAY "BORN " TYPE 1…SHE NEVER , EVER HAD MUCH FUCTION TO PRODUCE INSULIN…BACK THEN I THINK SHE HAD TO USE NSULIN MADE FROM SHEEP OR HOGS…IF I'M NOT MISTAKEN ! FOR THE FIRST 10 OR SO YEARS, OF HER LIFE…THEY USED NOTHING BUT ORALS AND THOSE INJECTIONS , TO HELP HER…AND SHE NEVER ,EVER WAS ALLOWED ANYTHING , BUT MEATS, VEGGIES…NO POTATOES, CORN ETC…FELT SO SORRY FOR HER ! WE'D HAVE BIRTHDAY PARTIES , CAKE , ICE CREAN…COOKIES..THE WORKS…AND THERE WAS POOR LINDA, SETTING IN THE LIVING ROOM…LOOKING MISERABLE…NOW , SHE USES AN INSULIN PUMP…IS VERY ACTIVE…RUNS MARATHONS…IS A SUCEESSFUL FINANCIAL WIZ…AND HAS A GREAT HUSBAND…AND 3 GREAT KIDS , THEY ADOPTED…SO…HAVE HOPE…THERE IS LIFE WITH… AND AFTER TYPE 1 DIABETES…GOOD LUCK, YOU ARE AMONG FRIENDS…AND WE ALL ARE IN THIS TOGETHER…PLEASE FEEL FREE TO ASK , MYSELF OR ANYONE , ANYTHING…AND THERE'S A GREAT SUPPORT STAFF HERE ON OUR SITE…YOUR IN GOOD HANDS !

RAINDANCER1950
RAINDANCER1950 2011-07-29 21:05:45 -0500 Report

HELLO JAYBEE52…ARE YOU A DOCTOR ??? I REALLY AM IMPRESSED WITH THE SCOPE OF YOUR ANSWERS AND ADVICE…NICE TO KNOW , YOUR HERE…AS WELL AS THE OTHER WHIZ BRAINS HERE,,,YOU ALL ARE SUCH SMART FOLKS…THANKS FOR TEACHING ME SO MUCH…IN SUCH A SHORT TIME !!

jayabee52
jayabee52 2011-07-29 21:41:16 -0500 Report

No Dr. But I had worked as a Certified Nurse Aid in a home health care setting and also in hospital, hospice, nursing home settings. I have a masters degree in a non-medical profession, but had too much stress in that profession so I got out.

I had contemplated taking classes to become an RN but as I was about to try events in my life interviened on 2 different occasions, years apart. The first was a divorce out of a 25 year marriage, necessitating having to work more hours in my CNA job and years later, when I finally had enough money to start classes, I became physically disabled and could no longer work.

Some of my knowledge came from being around my 2nd wife "Jem" (who was a real gem of a lady). She had a lot of "medical challenges" (as she laughingly called them) and so did I. As she was blind I was intimately involved in her medical life because I needed to take her to her Dr appts, test her BG levels and vital signs and record them and send them to her Endo so he could help her lower her BG levels due to cortisone injections and prednisone pills. I learned SO MUCH from her and with her.

Jem also had a Masters degree in Social Work and was a Licensed Clinical Social Worker who was a consultant for Physical therapy companies in California. I helped her find resources for the PT patients who needed to find resources. I learned a lot about various conditions there, and Jem had me look up a lot of medical conditions on Google. After she passed from this life in July 2010, I continued looking stuff up, now I was on Diabetic Connect and looking stuff up that I didn't know. I still do and enjoy it greatly.

It is nice to know that our efforts are appreciated.

I have always tried to be a blessing for people

James Baker

vonweidhaas
vonweidhaas 2011-07-29 20:27:32 -0500 Report

I realize our "types" are different but as a human I relate to your emotional issues. The human connect is imperative for all of us who face any disease. I myself am a newly diagnosed type 2 (june 29th 2011). My life had become comfortably numb for quite some time. I was complacent, depressed rolling through life not involved with my own until I got sick. What a smack in the head! Have you sought out any support groups where you can physically go to and talk to others?? In my town none exists other then a hospital group which is not covered by Insurance. Your young still with amazing worlds yet to unfold, challenges and rainbows to cross over. I am here along with many others if you need to talk, feel free to message me. You are not ALONE. Hope to hear how your doing :)

lmkilday
lmkilday 2011-07-29 17:04:48 -0500 Report

What is causing you the most stress? Identify one thing that is causing the most stress and learn everything you can about that aspect of type 1 diabetes. Then begin to address the issue by talking to your doctor, a certified diabetes educator, dietician or some other type of professional until that item is no longer a concern. Then tackle the next item causing you stress.

jayabee52
jayabee52 2011-07-29 11:56:32 -0500 Report

There are several type 1s who are prominent members of the DC community. I am t2 so if it is something that only pertains to t1s I can't help you. But I do know several t1s quite well and I know that they are living fairly healthy and happy lives even though they have diabetes. Some t1s are approaching 60 years with this condition and seem to be going strong and have few complications.

Blessings to you and yours

James

nanaellen
nanaellen 2011-07-29 11:47:13 -0500 Report

Not sure I can help, I'm Type 2 don't know that much about Type 1. What kind of help are you looking for?? Is there something specific? If it's about fear or anger or denial I can help with THAT!! Been there, done that!!

riquelskyy
riquelskyy 2011-07-29 17:00:55 -0500 Report

Ugh it's everything all in one. I've had it for 6 and I'm still stuggling. With stress anxiety depression and feeling like no one understands me

nanaellen
nanaellen 2011-08-01 22:33:17 -0500 Report

I've had mine for 6 yrs also. And I STILL have an anxiety attack before EVERY shot of insulin so I feel ya on that!! Still trying to get my #'s under control too!!! Just gotta breathe and relax and take one day at a time!! It's GOT to get better!! I'll keep YOUR chin up if you'll keep MINE up!! lol

vonweidhaas
vonweidhaas 2011-07-29 20:32:19 -0500 Report

Music… When I feel really funky I blast my 80's music, when I am sad I play Phantom of the opera's "Music of the Night" - wonderful song, makes me sob which helps relieve stress. My readings go nutz when I am stressed. Depression can be treated and probably would help a great deal as well. I also have anxiety attacks so I know where your coming from

jayabee52
jayabee52 2011-07-29 19:09:57 -0500 Report

Well "sky" (OK to call you that? - if not, apologies)

You can talk to us here and we're likely to understand you much better than those who aren't diabetic would. Come here to vent, ask "stupid" questions (only question IMO that is stupid is a sincere question which is not asked), brag about your accomplishments in working with your Diabetes, and just relax among friends who "got your back".

Even us t2s can understand the frustrations and struggles you face, at least a little bit.

Praying that you can learn to trust us to "have your back" and relax among us.

James

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