PCP had me stop using Pump to Test Levemir

Theresamd
By Theresamd Latest Reply 2011-07-30 00:17:06 -0500
Started 2011-07-29 09:33:43 -0500

After close to 2 years on the Insulin Pump w/100 units of Humalog per day, my A1C is 10.3. Not much better than before the pump. I am very brittle, ranging from 38 - 600+. I've gained alot of weight. I've been in and out of the hospital several times since 2009 with diabetes related complications.
Last week, my Primary Care Physician told me to stop using the pump to test 2 injections of Levemir per day. I feel horrible most of the time.
Has anyone else been switched from pumping back to injections? What was your experience?


7 replies

Type1Lou
Type1Lou 2011-07-29 18:24:08 -0500 Report

Is your PCP really well-versed in treating diabetes? Had I continued to follow my PCP's advice (upping my Lantus dose and cutting back/eliminating my NovoLog) I'm convinced I would not be here today. In December, 2010, I asked for a referral to an endocrinologist. They actually cut back on my Lantus and gave me a sliding scale for my NovoLog. We're still working on the right sliding scale and I do need to get better at counting the carbs. I just ordered an insulin pump and have great expectations. One of the reasons you're feeling bad is because your BG is out of control. If your PCP is not a board-certified endocrinologist with experience in diabetes, I would see someone who is. This is nothing to play around with!

realsis77
realsis77 2011-07-29 10:54:43 -0500 Report

Hi. My expirence has been being switched from oral meds to insulin. It was the best switch and really worked well for me! On oral meds I was running 300 to 400 every day! Now with my insulins I run normal as long as I'm taking the shots as I'm supposed to. My switch was a good necessary switch that bennifitted me! I'm so greatful the switch was made! Now, if your doc is usuing you as a "test" subject this is not good. If the switch is NOT bennifiting you id speak up and get switched back as soon as possiable! I would make darn sure my doctor switched me back if my numbers were suffering! This is your health we are talking about and you are not an expirment! Id contact him and let him know I demand to be switched back IF the treatment is not bennifital to you! Good luck and take care! Keep us posted on how your doing ok? God bless!

jayabee52
jayabee52 2011-07-29 12:40:54 -0500 Report

Howdy Lynette, good to see you again!
I answered a bit differently than you for the reason that she has only been doing this for about a week, and her system may need time to adjust to the change. Should her "feelling horrible" continue for a month, then she should seek to change her regimen. What she had been doing was clearly not working for her as her wild swings from 38 to 600+ indicate. I really think the PCP is trying to look out for her best interest. That means there will necessarily be a bit of experementation until a better way is discovered that works for HER with her brittle diabetes. My Jem was brittle too, and it was quite frustrating to have her swinging all over the place. Sometime her endo had to experement a bit to find what worked for her at that time.

Blessings to you and yours!

James

realsis77
realsis77 2011-07-29 14:31:14 -0500 Report

Thanks for clearing that up dear friend! I'm a bit confused:) good to hear from you too! God bless you and have a great day!

jayabee52
jayabee52 2011-07-29 18:28:34 -0500 Report

sometimes little things are easy to miss, and I've done it too. I go back and read a post and a reply I'd made to it and I do a slap to the head ala "I couldda had a V8" I missed a word or two and would have answered differently if I'd seen it before. How is the new house?

realsis77
realsis77 2011-07-30 00:17:06 -0500 Report

things are going great with the house! The ultility bill is less than we were paying for the rental house as is the water bill! I was plesantly suprised! The old house had a cooler, this house has air conditioning! Id thought it would be more! But I'm sure NOT complaining! :) thanks for asking! Now we just need to work on the yard and make it nice. Soon we will get grass for the back. It all comes little by little. Its looking like a home! We are pretty much settled in. I still have a few boxes left :) I hope all is well with you! God bless and write anytime!

jayabee52
jayabee52 2011-07-29 10:02:37 -0500 Report

Well Theresa, I have not had that experience you share. My experience is from oral meds, to insulin, and then from insulin to controlling my Diabetes using no meds at all for diabetes and using my eating plan to control it. I experemented with that and had success.

One thing I think is that your PCP is trying to look out for your benefit. That your A1c is 10.3 is not good. You may not feel good, but your PCP is not satisfied with the status quo, and so wants to see if something else works better for you. I am sorry you are so miserable with that experement. I pray you have told PCP that this is not working for you. Perhaps give it a month for your body to settle down from its shock of the change, and then let Dr know what is happening with the experement. Sometimes it takes a bit of experementation to find what works best for YOU as an individual person with Diabetes. Hang in there Theresa

Next Discussion: Do you Exercise? »