Reality of dealing with facts!

diabetes control
By diabetes control Latest Reply 2011-08-01 13:37:24 -0500
Started 2011-07-29 06:29:54 -0500

It seems it is more about who says it than who is right! Read a blip on a medical blog similiar to this one, the doctor admitted she is bias from the West. One important point she did make is, " results can varies using the same test items". Our diabetes here is a case of it own. I take a huge number of reading to know more about me. Some don't want to know!

Lewis


28 replies

MadManBro
MadManBro 2011-07-30 08:34:49 -0500 Report

Doctors can offer advice and they can give informed opinions, but once we leave their office we have to take full responsibility for our health and that includes decision making. I was also told to test my blood twice daily when I received my meter one week ago. A fasting test and an after meal test - any meal. It made the most sense for me to test after a later meal than right after breakfast, so I started out testing first thing in the morning and 2 hours after dinner. Coming here changed my perception very quickly. I trust my doctor and my diabetes educator, but I also believe that we all need to fine tune our treatments. We can't prescribe the drugs we take, but we can monitor the side effects and get informed enough to ask the right questions. Two days ago I started to test myself four times a day instead of two. My highest reading since I got the meter was 181 after dinner. Yesterday my reading at that same time was 143 and by the time I was ready to turn in for the night it was down to 112, and that was an hour after I had made myself a BLT sandwich with turkey bacon and full strength mayo on whole grain bread.
I am so new at this, having to control everything I do in deference to my Diabetes. I know that there will be many challenges, but largely it takes common sense and dead calm in the approach. Panic and despair will kiil us. Being a sheep to doctor's advice is also a bad idea. They can only give us the most basic tools and perhaps, if you have a good one as I do, give the encouragement to learn about what our bodies are trying to do to themselves and how to prevent damage and help healing. We can't just walk out of a clinic and think that the visit alone was enough.
I want to know.

Genaveeve
Genaveeve 2011-08-01 12:29:33 -0500 Report

Yes I completely agree with the fact that each of us need to fine tune our own regimen at home or at work. I had conflicting information from my nutritionist and my endochronologist so I took a combined directional approach to my regimen with the information that was taught to me. I take pills in the morning actos and glimeride and insulin at night. I am now dialing down every three days my insulin one unit based on my fasting reading but also if I feel funny during the day I take another read. I am currently hitting too low once in awhile through the day so have to watch protein amount intake and carbs.

diabetes control
diabetes control 2011-08-01 13:37:24 -0500 Report

At least you are taking and making the effort. I was out yesterday with family and got weak, sitting and eating a orange and pressing the juice out brought me back, probably should have not been out in the heat that long. For myself, I have been blessed to not watch tightly how much and when I eat, but I still practice the art of not comsuming the bad stuff.

diabetes control
diabetes control 2011-07-30 09:01:32 -0500 Report

Realize that the doctor's waiting room most likely is crowded and he has 15 minutes for you. Your numbers say you are already doing what you have to do to be safe. In essence, do we have a choice? Laughing,, I love grits and eggs, this morning I had oatmeal. I do a lot of research and the surgery I had open up the doors for me to see some new things. It is two things that I listen to, that is my body (how I feel) and my glucose meters. Confirmation this morning all 4 were in a 8 point band and where I want them. Now I can ease up on burning the strips. Not looking for any glory, in 3 days I cross 70, access what changes I need to make and point for 80. You are so blessed to find what was wrong and take charge and do something about it!! Like in the "Star Wars Movies", may the FORCE be with you.

MadManBro
MadManBro 2011-07-30 10:02:55 -0500 Report

Congratulations on your upcoming 70th anniversary. There are so many truly amazing and inspiring peope here on DC. I try to gather knowledge from as many sources as I can, but thus far, noplace is as comfortable to be as DC. Even though I see a few of you are also on the other boards as well. This place reminds me of someone's large kitchen, with coffee always fresh and something good - and good for you - always about to be served. I know that my numbers are pretty damn good at the moment especially when I read about the highs that some have experienced. I also know that my numbers could take a turn for the worse any time if I let up and backslide. It takes effort, but eating well is not unpleasant and it isn't filled with bland or tasteless meals. I guess for me, the idea of fresh produce, more fish than steak and the complete elimination of refined sugar and flour was always going to happen regardless of my Diabetes diagnosis. I have had my lifetime's worth of deep fried foods and cinnabons from the mall. That stuff was good, really delicious and I loved it. But I stopped eating that way years ago, so these adjustments were in place and that has probably saved my sanity and my life. I hope that newly diagnosed members will take a deep breath and realize that the fun has not been taken out of life with their diagnosis. Quite the opposite, the fun will be extended because you now have the tools to manage an issue that can and will kill you one piece at a time if you don't make yourself work with your body to fight this disease. Doing the right thing will make you healthier than you were before your diagnosis.
But you have to do your part in this. We all must.

diabetes control
diabetes control 2011-07-30 10:57:45 -0500 Report

I like what you say, hopefully you caught this before any neuropathy sets in. Sugar and white flower are not our friends, the sugar is easy to give up, ice cream and cake you can have it some times, I personally do not like going COLD TURKEY, do this, take a table spoon of sometime, hold it in your mouth. The results will be you have gotten to savoy what the hold pot taste like. Now for the fish, get a side of MAI-MAI, salute some different onions, bell peppers, garlic and then put the fish in using virgin oil, the skin makes an excellent plate, eat it right out the skin. Now make a sauce of horse radish, tatar source, red source and our friend (a little ketup). It doe not get better than this. Taste good and good for you. Two boil eggs, half a bagel with a tab of jelly and coffee is another. Some low fat free yogaut, 10 grapes, slice a banana and down that. My salads some times cost $2.39 and I have them put every thing on it plus my 1000's(sorry know oil is better, but some things I got to have my way), now a famous sub sandwich is good for you. Wait a minute, "how could you be hungry??? Well, I have been a guy gone wild, but the surgery weaken me and I am getting my will and strenth. Be blessed, let's make this illness a non-event, or take something very bad and make it good!

diabetes control
diabetes control 2011-07-30 11:38:24 -0500 Report

One more thing, take the same MAI-MAI meal and pull the veggie out and drop two eggs in, I design this meal in my first war with diabetes, same sauces, and I call this my reverse omelett.

George1947
George1947 2011-07-29 23:27:53 -0500 Report

If we don't test, it's like going into the Sahara without a GPS. We have no idea where we are or where we're going. I told my doctor I wanted to test more and he prescribed more strips. :)

diabetes control
diabetes control 2011-07-30 02:05:38 -0500 Report

You are right, I am burning strips like mad because I am the test rat. The reason the rat is used, their life cycle is like 14 days. Humans studies might take 6 months or a couple of years to get some meaniful data. I would guess that 90 percent of the public do not know what diabetes is nor what a glucose meter look like. At 66 I did not know. When I found out I start keeping a daily sheet, Blood Sugar—Blood Pressure—-Body Temp and Body weight. Know yourself, and you can see a problem coming, maybe. I say maybe because the MENINGIOMA TUMOR worked on me slowly and my body shifted according. All the power was leaving my right side to my left and un-noticable things like drawing and writing with my left hand amaze me. My baby son's words, "Dad, that might not be a good thing". Speaking of GPS or LORAN, went deep sea fishing and the weather was so bad, could not see any thing,,dial those numbers in and in time you would here those farewell port buoys.

Now back to you, testing is your one thing you have to stay ahead of falling prey to some nasty complications. I know how strong Jackie Robison was, diabetes took him at the young age of 51. It is a blessing to have our technology and use it. Bless the people, 1-9 to 1-3 is not a pretty projection for diabetes. Some changes are going to have to be made. I am sorry I blew your ears off!

George1947
George1947 2011-07-30 14:59:26 -0500 Report

Not a problem, as I too know how things can sneak up on a person… I'm dealing with thyroid cancer and have had 2 surgeries and 2 doses of radioactive iodine… still have "suspicious" nodes in my upper chest. I get tests for that too, only not at home… We have to be on top of diabetes or it will kill us!

diabetes control
diabetes control 2011-07-30 16:24:54 -0500 Report

Check into getting your PSA level over 7. Below low that number your body is acidic and above 7 it is alkylamine. When I had my CAT scan for my head tumor two .2 inches markers showed up. Now I will be watching does marker. Going alkylamine will also help the diabetes cause I would thing. Gezzzzz, if it not one thing it is another. Look into oxygenated water. I recommend the CNCA immune pills, not pitching them but I think they have helped me. Good luck!

diabetes control
diabetes control 2011-07-30 16:47:00 -0500 Report

Cancer Nutrition Center of America,,,CNCA, Immununomax ,,,Multivitamin-Mineral with Antioxidants A, C, and E. I take one a day, to ease the cost of shipping I have bought two. I also take a good multi-vitamin. Very important to elevate your immune system. Their web has a more detail package containing addition supplement. Some things has worked for me. Blessed to be getting in control.

Gabby
GabbyPA 2011-07-29 09:16:49 -0500 Report

This is so true. My doctor tells me to test twice a day. REALLY? I fought him on it for a while, now I just do what I want and test as I need. Our bodies are so complex and so many things effect our levels. It is hard to just test a couple of times a day to really get an idea of what is going on inside.

jayabee52
jayabee52 2011-07-29 08:08:21 -0500 Report

Howdy Lewis
I noted on a wall posting (that I saw in my Yahoo inbox) you had been thinking of leaving DC and not coming back. It seems that you have changed your mind about that, and I, for one am happy you are not leaving. I may not agree with you ALL the time, but I want you to know that sometimes you DO get me thinking.

I don't want to be so narrow and closed minded that I can look through a keyhole with both eyes at the same time! LoL! On the other hand, I don't want to be so open minded that my brains fall out either! It is a balancing act.

There's a term for those who don't want to know about their diabetes: it is "In Denial"! I too take a lot of meter readings to know what affects me personally and how much it affects me.

Blessings to you and yours Lewis

James

diabetes control
diabetes control 2011-07-29 08:33:25 -0500 Report

I love you jayabee for that post, the balancing act is what we have to go by. In a way I have been blessed to be sick, because it has open up the door to learn more because I can feel it. I was looking at another video and it had the most graphic pictures of diabetes can do to an individual, but when I researched their product, the test subjects (mice) did not show any effects. So fear tatics to sell something to make money. I did start to leave, but I can hold my tongue here, because I am only running data on me! I am encouraged that my sister (lost the three others) who is 68 went and had her blood work done. My older Aunts and Uncles are gone but they had sores all over their legs, I suspect diabetes. My dad's half brother lost both legs, agiain my guess is diabetes. When you are sick, you can not afford to close your mind. My prayers are for you to save those kidneys. A machine can not do what a body can. I am going to the West side to attack this weight!

Lewis

jayabee52
jayabee52 2011-07-29 10:39:45 -0500 Report

Please do not "hold [your] tongue" completely on DC Lewis. I have learned a great deal by being involved and asking questions. A couple of times people were grateful I asked that "dumb" question because they had the same question but either they didn't know how to ask it, or didn't want to seem stupid. If you chime in with your 2 cents, who knows what information it triggers someone into remembering and sharing. We may both be taught thereby .

I agree, a machine cannot do what a normal, healthy kidney can do. But I had undergone dialysis for about 10 months back in 2006 - 07 and it saved my life and kept me alive until my body could recover enough from the kidney infection which shut them completely down.

My kidneys are damaged now to the point where I will need dialysis soon, and perhaps get a transplant when one is necessary. I am looking forward to the dialysis to give me back the stamina and the vitality I once had.

Oh and BYW, Lewis, since you are wanting to "attack this weight" are you aware about the Obesity connect site? You can find it in the black band at the top of this page where it says "visit another community". Select obesity connect and use your DC login information to join there. There are a lot of other "connects" in which you might be interested. Some of the same people as here on DC, but many new friends there too.

Since I am having problems with my kidneys I am urging Alliance Health (the company behind the connect sites) to launch Kidney connect ASAP. If you feel so inclined go to the "visit another community" and select "What would you like our next community to be?" and let them know you'd like to see a Kidney connect site, or some other site of your fancy.

Blessings!
James

PS if you haven't seen it already I have sent you an email message on the DC mail system, concerning a couple of things you mentioned on your post to my wall.

diabetes control
diabetes control 2011-07-29 11:09:55 -0500 Report

James on the weight, I am not normal. I have to control what I eat and how much, Stiff cardio, like a treadmill for an hour and then something like swimming a lap and walking back and then re-swim it, and do this for two hours, I have out lived my teeth, at the moment I can not eat the raw veggies but I can steam them. 298 seems to be a barrier for me. When I do take control I will take it on down. My life changed at 50, I losted a sister to mental illness and two year later lost my mother. My family put her deceased kids on me, I had to stop what I was doing to stay healthy and start cooking and eating with them, and the STRESS was un-mearsureable.

Now my at my last work assignment, I went in and changed one of my company's processes. I would listen to what ever one had to say, I could handle the electronic but there was alot more involved. We all won! Again, I am waiting anxiouslly on those neuro-specialists appoint , I then will know more.

Bless every one, you never know how good it to be with out a complaint until you feel bad.

Lewis