Charcot Joint Disease

By noneontherun Latest Reply 2011-07-06 13:58:01 -0500
Started 2011-07-05 17:38:54 -0500

Was I ever surprised when one day I couldn't walk into my apartment, but had to crawl on my hands and knees due to the pain I had in my ankle. All along I thought it was arthritis due to a car accident 20 years ago in which one ankle was broken and the other sprained. That was 3 months ago and I am still not working and educating myself all I can about Diabetes. I was diagnosed 10 years ago, see the doctor every three months, get my A1c tests, take my meds, but didn't get my exercise, have a sitting job all day long and quit checking my glucose daily because I figured the A1c was all I needed. It always tested at 6.5 or below…so I was secure. This has really been a difficult time and I was wondering if anyone else out there has Charcot…hopefully, I will be able to keep my foot, and get word in the next couple of weeks that I might be able to start walking again…I pray!! I am definitely eating better, checking more and motivated to level out my glucose daily…

5 replies

olgirl505 2011-07-06 10:04:10 -0500 Report

I've had Charcot foot for about 3yrs. Not fun, I wear a crow walker, which is sort of a removable cast. My right foot is deformed and can't walk on it without the boot, surgery is out, Doctor thinks I might get infection and lose the leg from the knee, so I just struggle day to day. I've developed several problems from wearing the boot, it's throned my whole body outta whack, arthritis in the hips and back are the worse, I've had to quit my job and and go on disability, which ain't that bad. But somedays I feel totally useless and get depressed, I have a power chair to get around with, so at least I can go to the pool for some exercise, which isn't helping, but makes me feel better when I'm in the water. I don't like to complain, but it's a terrible disease and wouldn't wish it on anybody. Can't go for walks or play games with my grand kids, pretty much handicapped, and I use to be so active. I wish you all the luck and hope you don't get like me, it's not for wimps that's for sure. I have my diabetes well under control and my a1c this last time was 5.5. I test everyday and no longer shoot insulin, just take a 1/2 pill a day. I hope you have better luck than I. Hope I helped some

noneontherun 2011-07-06 13:34:56 -0500 Report

Thank you for responding. It always helps to hear from someone else in the same situation. I never heard of the crow walker. Today I will find out more for what is on my horizon. I thoroughly understand the body being out of alignment, I am experiencing the results of that as well. What amazes me most is that I thought I was taking care of my diabetes, but evidently, this proves I was not. That is the most humiliating and discouraging. It just tells me that I will always learn more and more about this disease, and I don't want to become so discouraged that I am not willing to do so. One thing I have learned is that all this comes not from diabetes, but from poorl controlled diabetes, so I want to do everything I can to keep control…my freedom of movement means so much to me…

olgirl505 2011-07-06 13:58:01 -0500 Report

Didn't mean to discourage you, it is nice to talk to someone that I have something in common with. Not to many people have any idea what it is, I was sitting at the doc's one day and did meet someone that has this disease and isn't a diabetic, I found that strange, cuz everything I read say diabetic. As the saying goes" you don't what you got till it's gone" is sooo true. I get really depressed when I can't do or participate in something that I love to do because of this. I have all this free time and can't even volunteer my time, I have just come to the fact that I "am" disabled. I'm usually a gal that see's the glass 1/2 filled and was raised to believe the are people worse off out there than I, and I guess I'll still hang on to that, but sometimes it's hard. I wish the best for you and will put you in my prayers tonite. My I ask "how old are you?" I am 55 and was diagnosed with diabetes 4 years ago, I always preach to my children and the younger people I know to take care of themselves, if they don't they will regret it. I hope you don't have to go through all the crap that I've had. Do look into the crow walker, I had a terrible foot doctor for a year and went to a specialist. I'm from the Sarasota Florida area, it there's anything I can help you out with, please feel free to ask.

noneontherun 2011-07-05 18:43:02 -0500 Report

Thanks for the encouragement…no problem there…have had 90 days off my feet to dwell on that…thanks again!!

fraejo 2011-07-05 18:22:56 -0500 Report

Hi Noneontherun,

I'm new to this community. Just joined yesterday. I happened to find your posting while exploring the site and had to respond. No small thing if you knew me (introvert through and through). I had never heard of Charcot Joint Disease, so quite naturally I googled it:) Now that I know a little about it, it seems so inadequate to say I'm sorry that you have to deal with it. Your posting was under motivation and emotions so I hope I'm not out of line by offering this: Faith is the substance of things hoped for. The evidence of things yet unseen. Keep hope alive! I hope you are able to keep your foot as well, and that you will walk again.