Chylomicronemia Syndrome

By bucky Latest Reply 2008-10-21 19:09:44 -0500
Started 2008-10-13 14:52:35 -0500

anyone know about this condition any info would be great cause my docs. cant seem to figure out why i keep having pancretitus attacks had 22 in just over 4 years whats really crazy is that i hear of people having just 1 and die so im sure counting my blessings right now we just cant seem to get my trygliserits under 10,000 even my endros are at a wall with it. for some reason a gene i have produces fat in my blood. So i did some research on my own and came up with Chlomicronemia Syndrome witch im gonna present to my docs in a couple of weeks and see what they say so any info from ANYONE would be great

4 replies

Leigh Marsden
Leigh Marsden 2008-10-20 16:16:27 -0500 Report

My name is Leigh. I went and checked around a little. Go to:

You may find some information there to help you. Your soooo young. I will try to find out some info for you. But, do try to research, It is in your best interest. Your friend, Leigh

bucky 2008-10-21 16:25:20 -0500 Report

thank you for your intrest in checking this out for me Leigh. i just went to my doctor with this and he did some research on this while i waited and he was pretty shocked that i had just found what was wrong with me on my own and he ( to my serprise) agreed with me lol. he told me to come back and see um in a month or so so he can learn about this himself then hell try and direct me in the right direction i was like damn i think i need a new doctor.

Leigh Marsden
Leigh Marsden 2008-10-21 19:09:44 -0500 Report

Hi there,
Don't be hasty, maybe you have sparked his interest enough that he may actually truly help you. See what he comes up with.
I am thrilled that you could find out some info. I have been so busy I haven't been on the net long enough to do anything. I apologize…

I am happy though that things are heading in the correct direction for you though. That is half of the battle…

Take care friend, Leigh

Bluebutterfly 2008-10-20 13:03:56 -0500 Report

I have never heard of this. There is so much a doctor doesn't know,I wish all the luck in finding what is causing your problem. Do keep us informed.I will sau a prayer for you also.Take care.

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