Im really scared and confused.

By sarahlynn25 Latest Reply 2011-07-06 12:44:50 -0500
Started 2011-06-17 12:39:06 -0500

My name is Sarah, i am 17 years old, and i was diagnosed with type 1 diabetes about 3 months ago. At first i was very accepting of this condition, i had accepted the fact that this is something i am going to have to live with the rest of my life. i always checked my blood sugar when i was supposed to, always took my shot on time and was never upset or conflicted about it. Now after learning about the possible illness and injuries that can come from this disease has me really scared. I am terrified to tell people that i have diabetes because i dont want anyone to see me differently than the girl theyve known since elementary school. I've gotten to where i slack off on testing my blood, on taking my insulin at the right times, and there was even a period of time where i could not give myself my shots. I can manage my meals and dosage, i just hate how hard it is for me right now. I find myself asking the question "why me" a lot now, and i just want to be happy again. I was just hoping someone could give any advice to me because im terrified and sad and i dont know how to overcome it. Please, if anyone has any words of advice or reasurance that all will be well again i would love to hear it.

36 replies

Kinn D.
Kinn D. 2011-07-06 12:44:50 -0500 Report

Hey! I'm Kinnedy. I'm 16 and have had type1 since I was 6. I'd love to start talking with you. I have a hard time keeping up with all my diabetes stuff, and sometimes don't do it because I'm too lazy.

LSpizale 2011-06-21 21:29:13 -0500 Report

Hi Sarahlynn, I'm 60 and a type 1 and yes it's scary! However, the way to "live well" with diabetes you must first educate yourself and then others about diabetes. I think the secret is to say "I have diabetes that I control, diabetes doesn't control me!" everyone who has diabetes at some time goes through some sort of denial. But please don't be embarrassed that you have diabetes. Actually diabetes gives you an edge over those who don't. You check yourself often therefore knowing your body better. It's the first thing I check when I don't feel well. Is it because my bg is too hi it low or on target then I can eliminate diabetes as the culprit. I make sure my friends and coworkers know that I have diabetes just in case I do get sick because of diabetes. and your real friends will want to help you. At seventeen it presents "peer pressure" problems like everyone is going out for pizza. Work it into your meal plan. It doesn't mean you can't have one piece. Make good choices. Most pizza places serves salads include one with your one slice. Go to local support groups. I'm sure your hospital can guide you to one. Make sure you you speak with your diabetes educater. Read diabetes magazines where you'll be surprised about articles similar to these on this site. Believe me you are not alone. This is livable. Speak with your doctor about an insulin pump. It made my life so much better. Learn all about carb counting. If you have a smart phone, there are many apps regarding diabetes and carb counting. It just makes it easier. You reached out to this site and I know you are going to do fine. All the best to you.

sunshine247 2011-06-21 00:33:37 -0500 Report

Sarah, you are not alone. No matter when you are diagnosed it is hard. I was diagnosed with Type 1 at 31 years old. I was devastated at first. I am now 39 and still do not have control (I have brittle Type 1) but I have learned to deal and I tell everyone about it. I have found that the more people I tell the more I find out have it as well and I am able to help them even if I can't help myself. You are young and strong. Don't be ashamed. This is not something you did, it just happens. Please friend me. I will be there for you to answer questions or just give you strength. All my love sister.

Dr Gary
Dr GaryCA 2011-06-20 22:43:26 -0500 Report

Hi Sarahlynn,

I just wanted to say hi and to see i I could add some support to the incredible number of responses that you have received from your freinds here on Diabetic Connect.

It is normal to ask the "why me" question. There isn't an answer to it. Things happen in life that we don't understand, and that don't make any sense.

You are still you. Diabetes has presented some new challenges in your life, sure, and your lilfe is going to be different. But you still have a future. Work closely with your healthcare team, talk to your parents about what's going on with you, stay compliant with your medications and diet. You can do this.

It might be really helpful to talk to someone about this. Have you talked to your doctor or nurse about how you are feeling? It can be helpful to get lots of information -- the facts can help with the fear. You might also want to look into support groups in your community for young people who are facing diabetes.

Stay in touch with us!


Jim Edwards
Jim Edwards 2011-06-20 13:27:33 -0500 Report

Hi Sarah, The good thing is that there are lots of type 1's on this site that have already walked the path that you are just starting down. You can learn alot from their mistakes (and adventures!) and not necessarily have to repeat them! Take care of yourself. Some type ones even get to see their 18th birthday! Actually my grandmother who was a type 1 lived to be 92 and went out with her feet and all attached. She lived a great life and she didn't even have DC to help her through!

Jlynn 2011-06-20 11:22:31 -0500 Report

Sarah, Welcome! Learn, LEARN and learn more. The more you learn the more confident you will become, and that confidence will outshine the rest.But it has to start with you..
You have ever right to feel the way you do, and I think we all have, especially the fear..
and the best remedy for that is educating yourself and those around you…
We are here to help, thanks for asking …take care..

jayabee52 2011-06-20 06:21:11 -0500 Report

Sarah, It seems that many People with diabetes (PWDs) often have a period of time in their lives with diabetes (DM) have a rough patch in their lives emotionally where the self pity comes out to wreak havoc with us and we ask the "why me" questions. Most of us do it at one time or another.

If you want folks to see you as the same girl they've known since elementary school, I would urge you to get on top of your DM and do your best to control it.

Take it from a long time type 2. It does get better! I am more in control than ever. I have come to terms with my medical challenges and this is my "new normal".

You are growing and learning as a young lady. You're most certainly not the little girl you were in grade school, you've improved.

Blessings to you and yours


sloane 2011-06-20 06:02:34 -0500 Report

Sarah-you are not alone;I have two sons with diabetes ages 25 and 27. They have had diabetes almost all their lives and are doing great. They are quick to tell friends that they have diabetes so that everyone is aware. Their friends at school have always been helpful and supportive. What you will come to realize is that most people are dealing with something even if it's not diabetes. Once you start to open up, so will they. You can do this Sarah. Now my son leads groups to help support people with diabetes!

genessa1601 2011-06-19 18:10:47 -0500 Report

Hi Sarah, you are in my prayers. Can't relate to type 1 or having to deal with it as young as you are, but I can empathize, and I know you can do it. Don't ever be ashamed of who you are or this disease. It is now part of who you are so try to accept it. (I know that it easier said than done :) ) I would also suggest a support group where you could go and talk to people your age and who are dealing with the same thing you are. Please don't slack off on testing or giving yourself your shots, that could be bad for you. Hang in there, keep us posted here at dc and I will keep you in my prayers. God Bless You, Ms. Sarah!

nzingha 2011-06-18 21:45:57 -0500 Report

Sarah.. I know how u r feeling but think on the positive side.. no need to be scared. there's a video here on DC where some people giving their testimonies…they have been living with diabetes for up to 60 years.. so what does that tell u? I have now been introduced to insulin .. and I make fun out of sticking myself.. I get real dramatic with my son.. and he says 'yuck…mummy that's not funny' and wants to know if it hurts.. it now I am an expert at sticking…it makes my head feel light and like I am on cloud 9 sometimes.. this strange thing going inside my body..but I am getting used to everything in this life u will learn.. u do what u have to do..u r in control.. dont be scared… since this phase of the disease is new to me.. i come here and read a lot and get involved in the discussions.. i also have a diabetic partner and we do our excerise pgm together… so thats a suggestion… get a friend who has the disease.. that will surely help!

Starry20 2011-06-19 14:29:15 -0500 Report

Just stay positive, tell your friends, they will except and if they don't then you know who you're real friends are… Mine play around while I'm doing it, they laught and asked questions, I even made a little dramatic part in my shot and we started crying and squealing and jumping and playing, they just try to make me feel better, so play around if someone doesn't like what you do turn your back, and ignore them!!

westina 2011-06-18 16:14:02 -0500 Report

sarah, I know somewhat what you are going through because my 4 year old grandson that I have taken care of since his mother left him at the age of 1 was diagnosed last week with type 1 diabetes. At first I was'nt sure I could give him shots and and poke him to check his blood sugar but I'm his only mother he's ever really known so I did it and now it's not as hard as I thought it would be. He's getting used to the pokes and shots but its still hard for both of us. I hope you will do well with this change in your life and we wish you the best of health. : Wesley and his grandmother

flyinhi 2011-06-18 13:26:20 -0500 Report

hugs to you Sarah…I was 19 when I was diagnosed with Type I, and it is scary, there's nothing wrong with feeling that way at all. Obviously, whether you tell people or not is your perogative, but I will say that there is nothing to be ashamed of. My Mom used to say "God never gives us anything we can't handle, he must think you're pretty strong", and I always took comfort in that. I think "why me" alot, but I remember saying that when I was in the hospital after my diagnosis, and one of the nurses (he was so awesome) said "why not you?". It made me think, ya know? I had lost one of my childhood friends to cancer at the age of 12, so this is doable.

As far as long term complications go, try not to think of that right now. You just need to focus on doing the best you can to take care of yourself, keep your blood glucose under control, eat right, excersize. The best advice I can give you is to find an endriconologist that you are comfortable with, because he/she will be an important part of your life.

Best of luck to you hun…there is lots of support here, as I'm learning more and more every day, don't be afraid to reach out, either here or locally.

sc1boy 2011-06-18 11:55:13 -0500 Report

I have had it since I was 18 months old and have been in your situation for many years. I asked the same ? to GOD so many times "why me" and the answer came back that he needed me to live and share it with people and let them know that it will be ok. I am now married and have 2 beautiful kids, that I was not suppose to have, and am loving life and living one day at a time. I also had to take the shots and it got to be hard. I finally got on a insulin pump and it has helped me out a lot. You may talk to your daoctor and see if they would recommend it for you. Like everyone has said talk to the nurse or diabetes educator or a good friend that may have diabetes. it does help.

marla50 2011-06-18 10:51:38 -0500 Report

Hi Sarah. I'm so sorry about your being diagnosed with the dreadful D. I've had it since I was 6. And boy have things changed. If you don't want to tell people you have it then don't. You may want to tell someone that hangs out with u just in case u have a low. It is a horrible disease but u don't have to let it win. I had it for 43 years before the complications started and I wasn't ready for them. If u don't test ur sugar and take ur insulin and carb count,that's when the complications will come faster. I started to go blind but modern tech saved my eye sight.
Diabetes is becoming an epidemic. So I'm sure the scientist etc are working on new ways to treat it and to cure it. There are people on here that have had it as long as I have and have no complications. I didn't take care of myself. When I hit my teens, I wanted to be like everyone else. But even though I didn't take good care of myself. I always took my insulin,tried to eat some what healthy and tried to exercise.
You say you don't like sticking ur finger, I had to pee in a cup take a dropper and put put 7 drops of pee in tube,drop a pill in it and see what color it turned.
Things are not so bad You just have to come to grips with it,figure a routine that ur comfortable with and live ur life. See a counselor if u need to. It's alot to deal with and especially at your young age. You came to the right place! People on here know there stuff. Good Luck! I know you can do it.

roshy 2011-06-18 09:08:44 -0500 Report

HI sarah!

I was a year younger then you when i was fist dx!!
You remind me so much of myself its frightning! i too was very accepting with the changes at the start and as time went on i didnt like the hassle of testing and taking the needles!! Trust me, your diabetes is percieved as abigger deal to you then to everyone else. They wont judge or stigmatise you for being type one. The more open about it the healthier diabetic you can be. Avoiding your needles now will only begin a terrible routine for yourself which is very hard to break out of later inlife. i know its a hassle at times but trust me, all those complications can be avoided if you take the time to take care of yourself. Being scared of what might to come isnt helpful. If yiou find that things are becoming over whelming the nurses in the hospital can be great to talk to .It can be hard to open up to family members or friends becuse you see them as people who you dont want to burden with you problems, just make sure you talk to someone about how you feel!

And remember your not alone! theres plenty of us who have delt with it all before!! dont be afraid to ask me any questions, ill only be too happy to help!!

Yours truely


szeringo 2011-06-18 08:38:04 -0500 Report

Hey Sarah, I'm 20 years old and I was just diagnosed with Type 1 last September as I was about to start my Junior year of college. It has been beyond hard getting my friends to understand what it is that I have to do on a daily basis but the way I see it is I would rather them know everything and anything just in case something ever happens when I'm with them. The spring before I got diagnosed I had to rush one of my closest friends to the hospital because of her diabetes, she tried to get me to help her but because, at that time, I didn't know anything about diabetes there was nothing I could do. I guess what I am trying to say is be open with your friends, and be open with your family. I'm the only one in my family with diabetes so I feel very alone sometimes but you just need to open up to them and let them know how you feel. They are your family and they may not know what you go through daily but they are always there for you. And, if your friends are like my friends, they will be there and they will want to know everything they can do. You just have to give them time because it is hard for us, but it is hard for them too; someone they love has diabetes, a disease they know nothing about, and that scares them. And, lastly, trust me, it gets better, way better.

jeffrey9127 2011-06-18 08:33:32 -0500 Report

Hello Sarah. It is not uncommon to start out trying to do everything right for yourself, and then to slack off when you begin to feel overwhelmed by the disease, and it's possible side effects. But testing your BS, eating right, exercise and taking your medication will help keep you healthy, and help you avoid the complications of Diabetes.

We all from time to time wonder, why me? I am not only dealing with Diabetes, but I am also battling cancer. I have had some why me days. But I have a wonderful family, and a good life. I have decided that I will make the best of everyday. There are people here at DC that are in worst shape than I am, but they are wonderful, cheerful people, who always have a kind word to say to others.

I would ask that you find someone you trust to discuss your feelings. I have done that, and it helps. God bless, and I wish you well.

eristar 2011-06-18 07:09:12 -0500 Report

I think we have all been there at some point! I was diagnosed as a T2 just a year ago, and the surgery I was scheduled to have had to be postponed until I could get my sugar under control. At that point I was taking 4 shots a day - before each meal and at bedtime. Yuck! Nowadays, I only have to take one long-acting shot at bedtime and 4 tablets a day, but I still get depressed about not having a second helping of pasta or a huge slice of cake with an inch of frosting on top :)
I don't mean to make light of depression - it is a huge problem, and you are not alone. I hope you will feel better soon, and as one of the other answers said, feel free to vent on here. We are all here to learn, and question, and help, and best of all, to listen! Take care - Erica

Alexx_x 2011-06-18 05:30:51 -0500 Report

If you take care of yourself then these complications most likely will not happen to you. And if your friends are really your friends then they won't care, just explain to them what it is. I was lucky to have a friend who knew all about diabetes (her brother has it) so she was able to be there for me, but after a while it's not such a big deal when you're around people. The hardest parts are usually when you're alone so it's really good to know that you have someone there who you can talk to. You need to see diabetes in a positive light, for me I saw it as I'm feeling better now, and it helped me to grow up a lot!

Armourer 2011-06-17 23:02:28 -0500 Report

I've been diabetic for 13 years. I wish now that I had been more diligent in the first few years because now I wouldn't have the difficulties that now present themselves. So please take the meds when you should, take the injections when you should, be careful what you eat. I look at how well Mary Tyler More, the actress has done with her diabetes over the decades and realize that if I'm good many future or possible problems can be avoided. But I have to care about it FOR ME! THAT I'M WORTH IT! Hay, you are young, and it takes years to have the many diabetic problems. And you don't have to tell people of your problems, only if asked, then it is your privilege to inform them about diabetes. Live life, laugh, and grow in God's blessings!

Harlen 2011-06-17 19:26:44 -0500 Report

Hi Sarah
I think that the things that happen to diabetics do so from NOT taking care of it.
you have a long and happy life to live ,take care of D and live Happy and if others think difrent of you then they where never your frends.
The only time any of my frends have sed or brung it up was when I was having a bad low and that was when I was let it on that they all -on there own looked up D and wished to know what to do IF something whent rong .
They are frends
Best wishes

Tender Tips
Tender Tips 2011-06-17 18:06:21 -0500 Report

Hi Sarah: As the others have said, it is so normal to have days when you are feeling down and overwhelmed. Sounds like you got off to a good start as far as taking care of yourself-that is impressive! I know it is hard, but if you keep on top of things, you should be able to avoid those complications. Maybe your doctor could refer you to a diabetes educator-they can be very helpful. Also, have you asked about a support group-maybe one for young adults? Take care and we are all here for you!

sarahlynn25 2011-06-17 18:57:50 -0500 Report

Do you know how I can find out about groups like that? I think i would really like to try it out.

Tender Tips
Tender Tips 2011-06-18 21:57:21 -0500 Report

Like Northern gal said-start with your doctor or diabetes educator. Also, you might check with your health insurance-I know mine sponsors groups. Or check with American Diabetic Association-locally or on-line. Maybe even check with your school nurse about starting one there. Good luck to you!

northerngal 2011-06-18 16:09:28 -0500 Report

Check with a nearby hospital or your doctor should be able to tell you about some. Even smaller cities' hospitals have lots of support groups that get together and it would be a great source of information and support for you. Check out the bulletin boards because you'd be surprised how much is available. Good luck to you and a big part of feeling better is keeping things in control. You have a long time before you need to worry about complications, especially if you manage it well.

Trudie Ann
Trudie Ann 2011-06-17 17:24:32 -0500 Report

Sarah that is a beautiful name, and you are a very pretty girl. I wish you the best with coping with your diabetes. I am a type 2 for approx 6 yrs now. All I can say is it does get easier. I know sometimes are harder than other times. We all have that. But you have a long and happy life to live for. I have 3 children and 7 grandchildren and I don't want to miss one day of their lives. Remember you are loved. Talk to your parents, tell them how you feel, this way they can help you more.
Please continue to take you sugar tests and do everything you can to helpyou to be the person you can be.
Sure we are a diabetic, but that is not what makes us who we are. You can make a difference in so many other young peoples life as well as your own.
I believe in you. Take care and God Bless you

sarahlynn25 2011-06-17 18:55:28 -0500 Report

Thank you so much! It's good to hear things do get better, especially from someone who has been there. It's hard for me to talk to family because I don't feel like they understand what I'm going through but I will try to open up to them more so they know what's going on with me !

Trudie Ann
Trudie Ann 2011-06-18 04:29:30 -0500 Report

Opening up to them is the only way you can let them know how you feel. Maybe they don't understand, but you can help them to. I know it's hard when you don't really know what to say. Just start by explaining how you feel, this will also help when you go to the doctor. Keep a diary of things you would like to talk about and any questions you have.
Your parents really do care about you, even if they don't understand YET. It will make you even closer to them, and always let them know how much you love them and that you appreciate them taking the time to listen to you.
A loving family is a very good medicine for anything that ails you. I know that because I have a wonderful husband that I can talk to. And a lot of great friends here at DC.
Even if you just need to vent a little we will always listen. And yes we do know most of what you are going through because we have been there. ( I say most of what you are going through because everyone is different in one way or another)

the diabetic camper
the diabetic camper 2011-06-17 13:20:07 -0500 Report

I would first let your family know what words hurt. The thing that always made me depressed was when my mom would say "what are your sugars?" I learned to just lie as a kid. Now I tell my wife to be patient and words like hey you are acting different lets test, or any other nice thing to say is good. The best thing is when family does not criticize you when your sugars are high. My wife is good about saying well make a correction and lets get back on that horse. If your family supports you in kind positive words then you will not be scared and all alone.

shugbaby1 2011-06-17 13:47:36 -0500 Report

yes i know those words…"where are your sugars",its like you know they mean well, but a part of you feels like you dont control that part of your life anymore, everyone is always watching you and what you eat…sometimes i do the same thing sarahlynn25 does,dont test,miss my pill doses,im not on insulin,but Victoza,i know i shouldnt,but sometimes its overwhelming espcially when you just find out,ive been 3 mths in after finding out im type 1 adult onset,which i didnt even know existed!i will use the advice that you all have given!

sarahlynn25 2011-06-17 13:34:24 -0500 Report

this may be to personal, and you dont have to tell me, but i was wondering, how and when did you tell your wife about your diabetes?

the diabetic camper
the diabetic camper 2011-06-17 13:47:33 -0500 Report

My wife knew from the start. I am one of the few that really embrace being diabetic. In high school one friend used to call me "Dave the dream Diabetic." To me it is simple to put it out in the front and tell everyone around me and I get to use all the diabetes jokes. What good is a disease no one can see if you don't get to use it to your benefit. I have used it to get out of tickets and if you let people know they will embrace it with you. My co-workers always joke about giving me an oj if I look at all out of place. They have had to call the ambulance 3 times for my miscalculations of getting a little low.

CaliKo 2011-06-17 12:49:31 -0500 Report

Hi Sarah, I'm sorry you are having to go through this. I'm an old T2, not a young T1, so really the only advice I have is that advice that is good for all of us. Stay on top of your treatment plan, including all the testing, shots and proper schedule of your meal plan and exercise. It's the only way you can avoid complications. There are more and more diabetics these days that are living very long, healthy lives, and with all that we know today, so you can be one of them. You'll be less likely to get adverse reactions from your friends if you are calm and responsible and knowledgeable about taking care of yourself. Educate yourself, and take exceptional care of yourself. You'll meet the occasional jerk, but maybe you'll just find that out quicker. We are all sad some days, and this site is a good place to find someone to talk to. Good luck!

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