Doctors and diabetics

Jim Edwards
By Jim Edwards Latest Reply 2015-02-06 13:10:08 -0600
Started 2011-06-08 13:32:03 -0500

As I read so many post about people being so scared now they carry the label of being diabetic. Personally, I have diabetes, I rarely say, "I am a diabetic" To me there is a mental difference. Now, I may get crucified for saying this, but a man far greater than me already bore that cross, but here goes. I have come to the conclusion that doctors, as a whole, are a very poor source of information for us. That is not putting doctors down. Think for a minute how many different diseases and conditions they have to keep on top of at any one time. Google diabetes or diabetic and see how many 100's of thousands of site there are for information. So, we start with the wake up call from our doctor, they may or may not send you for diabetic counseling. To me, the reins of this horse are now in your hands. Want information? Check with your local hospital, go onto the internet and connect up with Lantus, Abbott, or some of the other suppliers and see waht they have to offer. Then get here to DC. Yes, here. Here where folks have tried the meds, the insulin, tried the supplements. Here where people that have watch their carb and calorie intake and are exercising regularly do better than us that fail on a daily basis. Here where you can be steered to multiple courses; here where you can hone the questions you want to ask.Knowledge is power. Your doctor, however good he or she may be, is probably NOT your best source for information about you and your condition. YOU need to provide them with information about you and what you are doing to help improve your condition. There is nothing too sacred for this site. Women ask about diabetes and menopause; men about diabetes and ED, both about how it effects their relationship with their spouse. Ask, and it will be answered, but ask here, not your doctor, because chances are they may not know.


160 replies

Sopies Grandma
Sopies Grandma 2015-02-06 13:10:08 -0600 Report

As for me, I'm not afraid or ashamed to say I am a diabetic. that doesn't mean that diabetes runs my life. I manage my diabetes so I can live my life. Diabetes is a part of my life for sure, and I don't care who knows it. The other night I went out to eat with my daughter and her hubby before we ate I had to take my sugar and then give myself an injection. My son-n-law thinks I should go to the restroom to do this. I said the heck I will! if it bothers anyone, that's their problem. I know that sounds a little hard but I will not hide from people because they think I should.

RosalieM
RosalieM 2014-11-16 18:47:11 -0600 Report

Yes yes you are correct. However some thing else is involved. That is the American Diabetes Association. They dictate to all their member doctors everything about diabetes diet, diabetes educators, clinics, drugs, A1c and on and on. Their recommendations for a diabetes diet is way to high in carbohydrates 6-11 servings per day. It is impossible for diabetics like us to
ever get our blood sugar to where they want it with their diet. They give drugs which cause weight gain. Then we are shamed because we can't lose weight and get our blood sugar down. I went through that same thing, than I took matters in my own hands. I have succeeded by rejecting all their flawed information. I did my own experimenting. Now after 20 years since diagnoses,
I am healthy with no complications. If I had listened to the ADA, I would weigh over 200 pounds, have heart disease and nerve damage. Thanks for listening.

Jim Edwards
Jim Edwards 2014-11-17 16:53:34 -0600 Report

I hope I am finally on the right path. A nurse friend told me until I blow breakfast, lunch and dinner out of the water, I will not win. Now it is my first "meal" of the day, about 1/2 half of what i ate for breakfast; 2 hours later, fruit and/or vegetables, (10:00am); then more fruit and veggies (especially veggies) every 2 hours. Then at 6 or so I have a meal. Usually 4-6 ounces of meat, maybe a bit of baked potatoes or bread, not both, veggies. Then a small snack at 8 and maybe another before bed. My BS has gone down some, but best of all I am not seeing anything over 275. Speaking of 275, that is what I weighed when I started this 2 months ago. I am now at 258.

RosalieM
RosalieM 2014-11-17 17:10:12 -0600 Report

I know a lot about diabetes and food as I have researched for many years. Depending what you are taking for your diabetes,
I wouldn't have your carbohydrates in the evening. If you are on drugs that is a different story. The reason being in the daytime you are active. You can burn off the carbohydrates, in the evening you are more likely to be sedentary and they stay with you overnight. If you are eating to drugs or fast acting insulin that may be different. If I know what you are taking, I may be able to help more.

Shawn Grant
Shawn Grant 2014-09-19 18:29:52 -0500 Report

My Dr. is just someone that checks my cholesterol and A1C from time to time. When I was diagnosed, there was no mention of dietary changes and he only briefly mentioned exercise. His strategy was to try different types and dosages of drugs to try to get my sugar down. We all know that drugs help but lifestyle changes is a billion times more effective. Most people are not willing to change their lifestyle and be responsible diabetics. Doctors have given up and give you a pill.

You have to be responsible for your diabetes. It is a disease of personal responsibility and there is only so much your doctor can do. You have to research, take control of your exercise and diet.

Jim Edwards
Jim Edwards 2014-09-22 10:24:17 -0500 Report

You are right. They say it takes about 30 days to change a habit. I wonder how long it takes to change a lifestyle? I have made great progress, but I have a long way to go. On another front I fight depression and SAD. Unfortunately, my relief or comfort from those is usually food, and I do not mean carrots and celery, but real food, like chocolate and bread. (at least the bread is homemade!) I have made progress in my eating, but fall far short on my exercise. My dogs love to walk, so that is a help.

Chefzoom
Chefzoom 2014-05-01 21:36:39 -0500 Report

I have a bone to pick with my doctor from about 20 years ago. I've been type 1 for almost 18 years, but 20 odd years ago my doctor told me I was hyperglycemic. He didn't explain to me what this meant. He didn't even tell me I was borderline diabetic. Had I known, I probably would have taken better care of myself.

nanaellen
nanaellen 2011-11-18 00:08:52 -0600 Report

I certainly agree with you Jim!! This has been my saving grace as far as information!! Don't know where I'd be right now without my DC Family!! EVERYTHING I learned about the Big D I learned right here from people that KNOW what they're talking about!! ;) Ellen

steadb
steadb 2011-11-17 11:54:04 -0600 Report

Thanks Jim. This discussion continues to be a powerful spark to several great lessons that many can learn from.

Ruth Alice
Ruth Alice 2011-11-17 23:15:24 -0600 Report

What should the BG level be. What's the high & the low?

Jim Edwards
Jim Edwards 2014-03-30 12:09:15 -0500 Report

Hello, RA. Hopefully by now you know the answer. 125 is your target. For me I do well not letting it get below 80. I begin to be non functional below that. I still have some off the chart 400. This is usually when i am fighting a bad bout of depression and seek food as a comfort.

Patty0057
Patty0057 2011-11-11 17:34:53 -0600 Report

I totally agree with you. In fact, not only are some MD's a poor source of info, but also poor at understanding & keeping current with new guidelines.

2011-11-01 19:19:40 -0500 Report

No Jim. You are not being too hard on the MDs. In fact I happen to agree w/u a 100%. Doctors don't know everything. As for myself, I get a lot more help and advice from you and others on this site than from my MD or my Endo. There's a lot of info that people share on this site. I've learned (believe it or not) a lot more than I've ever learned from anyone in the medical profession. So Jim that's all that's fit to print. (as for now. :->)

Jim Edwards
Jim Edwards 2011-11-01 12:25:48 -0500 Report

Some have emailed me and thought I was too hard on the doctors. I don't think so. My point is do not hold the doctor up as a God, as someone who knows it all. Think for a minute how many diseases and conditions there are and how many variations there are of each. Take cancer for instance. How many types are there, how many treatments? Your doctor does not have the ability to keep up on all of the diseases and conditions. You need to grab the knowledge about your condition and share it with your doctor so they can learn. If I come across something I think he should know, he gets it in writing for my file and for anyone else he treats. So, be your own best friend, arm yourself with knowledge and power. Jim

Gemm
Gemm 2011-11-01 11:05:04 -0500 Report

Actually, our doctor was one of our best sources for information. He is a specialist in diabetes (he is one doctor of only 3 in our area overseeing a study on a newer insulin which my hubby participates in) and he told us both to look for further information on-line because he doesn't have all the answers. He said that by going on-line we possibly can find new information faster than we would otherwise if we waited for him to get the information and then pass it on to us. He also admits that with the number of patients he sees it is impossible for him to remember who he has and hasn't given a particular item of information, even with his notes, as much information is often given in chit-chat after he has made his notes about whatever we have gone to see him about is completed. Yes, he is one that does take time to just chat with us when we go see him because he knows that is often when we will reveal things that we may not have directly come to see him about :)

steadb
steadb 2011-11-17 11:51:19 -0600 Report

Great feedback. Sounds like you have an enlightened doc. Cherish them. Was this doc affiliated with a hospital like kaiser, intermountain or in private practice.

Dixiemom
Dixiemom 2011-11-01 10:27:35 -0500 Report

Well said. I have learned a lot just from the few months I've been on this sight. If you have other problems, there are more sights just like DC. Go to the upper right corner of the sight and you will see Visit another Community. Click on and it brings up several. I joined the Breast Cancer sight thru this.

Caroltoo
Caroltoo 2011-11-01 00:49:27 -0500 Report

Stated very well. I have often felt like I was on my own almost from the start. He did refer me to a Diabetic Educator who began my education and I appreciated that, but most of my knowledge has come from self study as you are indicated. I always felt he was concerned, just didn't have up-to-date knowledge. I've since changed doctors. The present one is quite thorough and keeps me accountable. I'm really glad I stumbled onto this site. There are such fascinating opportunities for interaction and sharing of information.

Jim Edwards
Jim Edwards 2011-11-01 10:16:28 -0500 Report

Sounds like you are on the right track. i am so frustrated with my sugar readings. It appears to me that I am insulin resistant. So that will be my next discussion

Caroltoo
Caroltoo 2011-11-01 12:15:28 -0500 Report

Jim,

My insulin resistance is most quickly responsive to regular exercise like walking. Is that an option for you? Even now, if I overeat at a meal and see that in my b.g. readings, a half-hour walk quickly starts to turn that around.

In the first year I lost 50 pounds (and never found them again!) by making dietary changes and walking at least two miles each morning. One of the other ladies on this site walks five miles a day. Insulin resistance seems to be one of the reasons for weight gain, so when you begin to get on top of the insulin resistance, the weight comes off more easily. Never a cake walk, but easier.

When mine go up, I consider it a learning experience. OK, made a mistake today. Did I underexercise, overeat, eat the wrong things, etc., and finally what can I do better tomorrow? This is really a one-day-at-a-time experience.

Carol

Jim Edwards
Jim Edwards 2011-11-01 12:18:55 -0500 Report

Why did you have to use the term cake walk? That was so cruel! lol. James just replied to my insulin resistant question in a new discussion and said the same thing. I appreciate the picture you painted. My only issue with walking is a knee issue, but I think a walking brace would take care of that.

Caroltoo
Caroltoo 2011-11-01 12:29:39 -0500 Report

Jim:

You might some other options like use of a cardio fit machine to exercise upper body in place of some of that walking. I have a small unit I purchased at Sears about 10 years ago at under $100 on sale. I use it as backup when I can't go out and walk. Weight training in another option that could be done with limited use of the knees. My husband had knee issues too. As you are suggesting, he found that slower, more carefull, and using some supports was his best choice.

Just keep experimenting until you find what works for you.

Sorry about the cake walk comment. I'm gluten intolerant, so it is truly an expression only. No cakes on my horizons and I'm ok with that. Frankly, I've always preferred apple crisp and things that are more fruit based.

Abby888
Abby888 2011-09-16 20:18:52 -0500 Report

Your discussion Jim was perfectly written. I didn't realize (until a month ago) how much I was relying on my doctor to give me direction at every single turn, good or bad. Then I saw this doctor who basically told me "Look-we don't have a magic pill to help you. You need to take control of your own health. We are only here as a guide". Of course this is the same doctor that gave me the unfortunate diagnosis that I had developed Diabetic Neuropathy 'sigh'…since that day I have turned my life around 180 degrees. I still have my moments where I want to act like a bratty teenager and not test…where I would like to sit down to a meal AND not have to take insulin first…but hey its reality. I'm doing the best I can and that's all we can ask of ourselves right? Prayers and thoughts are with you :)

Jim Edwards
Jim Edwards 2011-09-17 10:46:58 -0500 Report

Yeah, I have those bratty days! I have stuck to my AM & PM shots and do my best to remember the midday Metformin, but I can go a week without testing. My insulin does not get regulated by each meal. I guess at times it may be I just don't care, but I think it is more of "What else can I do?' I do fairly well diet wise, but could do better. One problem is that when I am bummed, chocolate and sugar just seem to help! I know I need a week of testing every 2 hours so the doctor can see the pattern and adjust the meds accordingly. I will get there.

Jim Edwards
Jim Edwards 2011-09-16 18:07:58 -0500 Report

I am so glad that I have the PCP that I do. When I go to him, he does his best to hold me accountable for all aspects of my health. Now he doesn't jump on me for my all too frequent failures, but he does encourage me to take hold and drive my health and not let it drive me. Lately, I have been doing really poor on testing my BG throughout the day. He would like me to test my BG every 2 hours for a week from rise to bed and maybe even a few times during the night. He wants this to get my medicines regulated, My problem is this upcoming separation and divorce just takes a lot out of me. I am looking for an alarm that I could set once and have it beep every 2 hours from 8AM to 8PM. So far no luck. I know I need to get this info and get it to him. I just need the grace to do it and I need to care more about my health. Times right now are tough and I suspect they will get worse before getting better. Keep me (and Amy) in your thoughts and prayers. jim

lorene1212
lorene1212 2011-09-16 18:29:25 -0500 Report

Jim dont give up on me now. I am here for you whenever you need. Listen, hon this is life and you may be right about it getting worse before it gets better but at least you are aware of this. Which helps you to set some boundaries and goals to focus on so that you do not go down hill. Catch yourself Jim, let go let God. I may not be that religious but I do believe there is someone out there, watching over us. Every minute of every day. I know you believe that is why I said this. Jim if I believe for you will it help ease your pain? Well, I do believe for you I see you growing because of this, I focus on the way you personalize and present yourself to all. By the way Jim who is Amy??
I also wanted to say your right about relying totally on your doctors cause they do have a large order to handle. It truely is up to us to take hold of our conditions and our lives. Find out things search things and yes, then come here and ask someone like Jayabee (Frank) He is a rock with all types of things. What a wonderful intelligent man he is like yourself.
I am sure sitting there in your place all you have is time to think well I think it is time to do something about just sitting around thinking Jim. I really care and that is why I am saying this to you. I think if you could find a hobby like I did. I painted by number paints and also crocheted when it got so I thought I could not go on. LOL I still have a few here so at times like that I have something to do. Maybe you could put planes together like when we were kids. That is alot of work. Or Make those ships in a bottle and send me one…LOL… I mean these are resources that help many maybe they would you too. I hope I just made you smile maybe even laugh. I care!
Hugs and more hugs…
Lorene

Jim Edwards
Jim Edwards 2011-09-17 11:04:11 -0500 Report

Amy is my wife of 15 years. She will be leaving the beginning of October. I am already in the drawing stage for my next log house. It will be smaller, but it will be.
Jayabee is James :), he is a world of wisdom, or as he told me once he does not know it all, but knows where to find it. He is a gem.
I have no problem keeping busy. I do end up at times walking away from it all to think and pray. If i do not do this, then I cannot get my mind to settle down at night. At home, I work on the log house, as it will need to be finished to sell. At work, I create my own work list and it can never be done!

jladytiger1979
jladytiger1979 2011-06-15 12:28:37 -0500 Report

I feel like after being part of this site for a minute I'm a lucky one. My doctor has been AMAZING! Checking up on me, making sure everything is ok. Educating me, what I was educated about. Regular appointments. When my lancet device gave out she said just come get another one. When I was having issues she was right there to walk me through it! (She is not an MD but a DO I have to mention.) Virtually the same education. I have to say she is the BEST doctor I have ever worked with (and I've had a lot). That being said I do think it is in the upmost interest of us all to EDUCATE OURSELVES! There is a reason that the saying is doctors PRACTICE medicine. They DON'T know everything. Having worked in he medical field and having family with severe health issues and also working in the medical field, I find it a part of me to WANT to seek knowledge and educate myself. the more YOU put into it (research, doctor's visits, etc) the more you get out. Your doctor doesn't listen? Your doctor shoves you full of medication and sends you on your way? YOU HAVE OPTIONS! SPEAK UP! YOU HAVE THE RIGHT TO CHANGE DOCTORS!

Jim, LOVE the article! EVERYONE has a voice! Don't get steamrolled by the system!

Jim Edwards
Jim Edwards 2011-06-14 09:07:36 -0500 Report

Well, Wednesday I get to go to a different type of doctor. I am going to have a tooth amputated. Already had 2 root canals done on it. Apparently there is a fourth root that they have not been able to find. Not looking forward to it.

Gabby
GabbyPA 2011-06-16 07:54:37 -0500 Report

It is tooth week. I broke one the other day...have to get a crown. YUCK. A friend of mine broke on the same day. What is going on here. Teeth are the hot topic of the week. LOL

jayabee52
jayabee52 2011-06-15 20:38:33 -0500 Report

a tooth amputated? I've not heard that term used for a tooth? Is this some kind of new proceedure

Jim Edwards
Jim Edwards 2011-07-04 08:13:08 -0500 Report

Yes, Amputated! I paid more than $4000 to keep this tooth (2 root canals, 1 crown) and ended up losing it. If it were $100-$200 tooth, it would have been pulled, but at that price it was amputated! LOL, now, anyway.

SongDude
SongDude 2011-06-12 15:11:21 -0500 Report

I grew up as a youngster outside of Boston, MA - Italian/American heritage, and all of that. My grandfather and I used to eat smelt - a cousin to the fish you're discussing… we would bread them with seasoned bread crumbs - and, broil them. We'd eat everything - bone and all. Of course, during Lent, we ate them on Fridays (haha) - they were far better-tasting than the frozen fish sticks they used to make in the day - if you picked them (the frozen fish sticks) apart, you sometimes found fish scales. Even dipped in tartar sauce, they were really awful. Be well, everyone. :)

Type1Lou
Type1Lou 2011-06-13 18:12:07 -0500 Report

My Mom used to make a fish stew with smelts, potatoes and onions. Wish I still had the recipe. It was yummy (but we didn't eat the bones although they would have been a good calcium source.))

Gabby
GabbyPA 2011-06-15 12:19:15 -0500 Report

I can't get past the concept of eating bones. I pick them out of canned salmon even! I just don't want to be eating those. Besides, the dog would be so sad if I did, she wouldn't have near as much to enjoy in her dinner if I did.

Type1Lou
Type1Lou 2011-06-15 12:59:33 -0500 Report

I, too, pick out the bones and the skin from canned salmon…wish I had a cat to feed it to. I like to make salmon burgers every now and then for a change of pace…sort of like making crab cakes but with salmon or even tuna instead…good source of those precious Omega-3's!

Gabby
GabbyPA 2011-06-15 13:01:31 -0500 Report

Yes, I love them. I found a old recipe for it, adjusted it for me and the family loves them. I always make a double recipe so there are left overs for sandwiches later.

nanaellen
nanaellen 2011-06-11 18:36:22 -0500 Report

No, NO Jim! It's not CHANCES are It's FACTS are your questions will be answered HERE before ANYWHERE else!!!! And I LOVE my Dr.!! He's ALWAYS genuinely CARED about ME!! I even got "reprimanded" for NOT going to see him!! :) He bluntly told me "I won't lose my house if you can't pay!!" I've even bumped into him outside of the office and he always asks how I'm doing or how's your sugar?!! He even advised me to up my insulin outside of the office!! The problem for ME was I had no insurance to cover OTHER Dr.'s and tests etc…THIS site has been my lifesaver LITERALLY! Everything I've learned…did it RIGHT HERE!! And I'm not a computer person at all just happened across DC in my e-mail by chance! I've learned about smaller and finer needles THANK YOU Realsis!! WHAT a difference!! I could not do this without ALL OF YOU!!!! AGAIN, THANKS TO ALL OF YOU WHO KEEP POSTING, YOU HAVE NO IDEA HOW IMPORTANT YOU ARE!!! Ellen :)

2011-06-12 12:58:35 -0500 Report

Hey Ellen, I can't take synthetic insulins anymore. And boy, do I have boxes of leftover syringes. If you would like to take them off my hands…

Jim Edwards
Jim Edwards 2011-06-12 14:55:59 -0500 Report

There is probably a more lucrative market in the city, instead of giving them to someone in need! Heck, you can even slip in some used needles…Oh wait, I don't live in Philly anymore! Ha!

Jim Edwards
Jim Edwards 2011-06-12 13:02:28 -0500 Report

Hey, I offered the finishing nails first! I will even boil them before I ship! :)

2011-06-12 14:55:03 -0500 Report

Hey Jim you have to boil the nails before you ship. Mine come individually wrapped for her protection!! :->

Jim Edwards
Jim Edwards 2011-06-12 15:09:11 -0500 Report

That is the same thing my 4 year old grand daughter says. I told her that I used the stuff from our compost bin and put it in our to be flower bed. A couple of weeks went by and we now have 16 tomato plants growing in there from the seed in the compost! Plus we bought 8 tom plants from Lowes before these sprung. I told her, "Pop-pop will have so many tomatoes I will have to throw them at you!" pause, "Pop-pop you're silly you don't throw food!" She is my daughter's daughter, no doubt! This week there will be a grandson added to our family. I cannot wait.

Gabby
GabbyPA 2011-06-13 07:22:14 -0500 Report

Congratulations Pop Pop....you can throw your tomatoes at him. He will be throwing them back at you. My husband and his daughter used to have grape fights in the house....OH my. I used to find grapes in the darnedest places. LOL

Jim Edwards
Jim Edwards 2011-06-13 09:06:15 -0500 Report

At least the grape fights were out in the open! My youngest sister hated peas so she would chew them up, wipe her face with a napkin, then tuck both behind the curtain in the kitchen. Weeks later, mom found out where the smell was coming from!
Oh Gabby, there is a Stone Soup Bistro in Sheppardstown, WV!

dietcherry
dietcherry 2011-06-13 09:10:42 -0500 Report

haha I felt the same way about cooked carrots-peas I didnt mind. Mom would buy those cans of peas & carrots and I would first separate one from the other on my plate, eat the peas and then attempt to feed the carrots to the dog when no one was looking. More times than not, the dog would relieve himself orally of the offending carrots somewhere on the carpet and bust me out!

Jim Edwards
Jim Edwards 2011-06-12 11:53:38 -0500 Report

heck elllen, if $$$ is a problem for your needles, let me know. I can drill down the length of some finishing nails. You would need to let me know if you want me to use regular finishing nails or galvanized ones! lol

2011-06-12 13:39:56 -0500 Report

Jim haven't you heard? It' galvanize nails that everyones after!! :->

Jim Edwards
Jim Edwards 2011-06-12 14:54:10 -0500 Report

I use to use the galvanized nails, but then I found the little nubs that remain are rough on the skin. Now that I have diabetes, it take too long to heal! ;)

2011-06-12 15:09:56 -0500 Report

Like I said Mr (Jim) Edwards, I LIKE YOU. YOU'RE SUPER SILLY!! And you seem so nice. I like nice people. :-> (This just bears repeating.)

.

2011-06-12 13:02:00 -0500 Report

Nice try Jim. But if you could pass some of the UNgalvanized nails in my direction I have another use for them. And I'm not talkin' about building birdhouses either!! :->

2011-06-12 13:32:40 -0500 Report

As a matter of fact I do. Gotta 1lb claw hammer I could borrow? :->

Next Discussion: sweeteners make you fat »