Honeymoon period

By mandymb Latest Reply 2011-06-07 18:29:20 -0500
Started 2011-06-05 06:44:03 -0500

I am almost 30 and I was diagnosed with type 1 when I was 11. My daughter who is almost 8 was diagnosed about a month ago. I was devestated! She was dealing with it fine, giving her own injections and adjusting very well. She was taking about 4 shots a day, Lantus (7u) and on a sliding scale at meals for BG's and carb coverage. Her BG has been great! We were doing really good with this, it helped that I know so much about it and I have learned the carb counting thing for myself, we were going to do this together! Then one day I got a call from school, her BG was 44! I was shocked and it puzzled me being that we hadn't done anything different and I couldn't understand it. I just chalked it up. Then later that afternoon, it was low and she had no coverage with dinner, checked it after dinner…78! What was going on? I didn't let her take her shot of Lantus that night, I was afraid it would bottom out in the middle of the night, planned on giving it to her in the morning. She woke up…88. We've been checking BG before and after meals…127 is the highest it has been and that was after a meal with icecream! She hasn't had any insulin in 5 days and the 127 is the highest. On the first day that she didn't have anything I, of course called the doctor (still no call back) and I started researching this. I'm coming up with this "honeymoon" period…what the heck! I've never heard of it. I've been diabetic for about 19 years and I never did that or even heard of it! I'm just not sure what to do…should she still take some insulin even tho it can cause some dangerous lows? I have left message for the doctor and no call back, her appt is in 4 days, so I guess we'll wait till then. If anyone has any info on this please let me know something!

25 replies

mandymb 2011-06-07 18:29:20 -0500 Report

Ok…is it over or what? I don't know what to do. Yesterday her BS was 203 after dinner, and within an hour was back to normal without taking an injection. Today, at school it went to 213 after lunch and corrected itself after about an hour back to 113! Today before dinner, 400! I did give her some insulin. Should we just start correcting with Novalog or should she start back on her dose of Lantus…what should I do? Her doctor appt is in 2 days I hope I can get some answers then. But maybe you all can help me till then. Thanks so much!

MarkS 2011-06-07 14:51:26 -0500 Report

I haven't read all of the posts but, yes, it is a 'honeymoon' period and, if I remember some of the articles I've read, can last upwards to a year. My thought is just keep checking her blood sugar and react accordingly.

Jim Edwards
Jim Edwards 2011-06-06 15:37:08 -0500 Report

I am not type one, but 2. first of all, this must scare the living beejeebers out of you, especially because you are trying not to show your daughter how scared you are. My "vote" would be not to admin the insulin, unless it was the slow type, like Lantus. Another option would be, if you choose to give her the insulin, would be to have her drink a big glass of water before bed, so she has to get up to use the bathroom and have her test her BG then. I see the replies are mixed, which is good, because most of them include the reasoning for thinking that way.
Wish you the best. Keep us posted. Jim

mandymb 2011-06-06 18:24:39 -0500 Report

Thanks for that idea, I hadn't thought of the water! And yes this is scaring the "beejeebers" out of me, I am up most night checking her blood sugar sugar anyway. We have been just letting her eat and not counting any carbs and just checking about an hour after she eats to see if it going up any, it has been in normal range so she hasn't had to have any coverage. But this evening it was 203…don't know what to do. I think I am just going to wait and see if it corrects itself before she takes a shot. Thanks a bunch and I will keep you posted!

marla50 2011-06-06 01:26:54 -0500 Report

Hi. So sorry to hear about your daughter. I went thru a honeymoon period. I was diagnosed when I was six and I think I was nine when I had my honeymoon. First thing. in my opinion,find a new doc. That is extremely dangerous. I don't think I would give her any insulin unless she has a high. I was taking one unit a day when they finally said no more. That was in 1968 so things like that weren't that common. I do believe it lasted about 9 mths. I still had to watch my diet and check my urine (no meters back then.) They wanted to use me as a guinea pig and find out why it happened but my mom said no. I hope every thing works out.

mandymb 2011-06-06 18:28:24 -0500 Report

I would love to fiind a new doctor but we don't have any insurance and we have to go to this clinic that sees ppl without insurance…it sucks but that's all we have right now. I have applied for medicaid for her and was denied! My husband just started a new job and he isn't elligibe for insurance until November. Thanks for the comment. Helps to know ppl are listening and trying to help!

dietcherry 2011-06-05 12:27:28 -0500 Report

Im T1 for 31 years; there is such thing as a honeymoon period where the pancreas hasnt completely quit producing insulin. I was diabetic for almost a year before I was finally diagnosed correctly with diabetes so my pancreas was kaput by the time I started on insulin.
Administer her insulin as needed until you get in to see her Dr. Good luck! :)

mandymb 2011-06-05 12:42:57 -0500 Report

Yeah me too! I don't know how long it was before I was diagnosed, but I know it was a long time cause I was very sick, been DKA for a while and the doctors didn't know what was wrong with me. By then I'm sure mine had already went maligned also! Where we knew the signs and symptoms we got her checked as soon s we noticed…so she was an early diagnosis. So I'm sure she may still be producing some insulin. I would just like to know how long this will last and can we prolong it at all. They should be working on something that would prolong this!

dietcherry 2011-06-05 15:43:32 -0500 Report

I know there have been several clinical trials for T1s still in the honeymoon phase and they are attempting to save the remaining beta cells. Maybe your daughter would be a candidate for one. I really dont know how long these cells last before the immune system destroys them. Maybe try the ADA website or another trustworthy source for more information. :)

mandymb 2011-06-05 12:42:56 -0500 Report

Yeah me too! I don't know how long it was before I was diagnosed, but I know it was a long time cause I was very sick, been DKA for a while and the doctors didn't know what was wrong with me. By then I'm sure mine had already went maligned also! Where we knew the signs and symptoms we got her checked as soon s we noticed…so she was an early diagnosis. So I'm sure she may still be producing some insulin. I would just like to know how long this will last and can we prolong it at all. They should be working on something that would prolong this!

mandymb 2011-06-05 11:09:43 -0500 Report

we stopped the insulin and she has been normal ever since, no lows and no highs…no insulin in 5 days!!! she was high before the diagnosis…531 and she was admitted into the hospital and got on an insulin dose. when we got home the dose was working good for her for about a month…since i've learned that she is going through this period we stopped the insulin till her pacreas completly stops
i've learned that it was because of her early diagnosis…that her pancreas hadn't shut down all the way yet

realsis77 2011-06-05 10:58:00 -0500 Report

Wow I've never heard of it either?? Maybe she needs a dose decrease. Its really important to get in touch with your doctor. Id contact your office and demand to speak with a nurse! Id do that immeditatly!!! Perhaps she is so active that its sending her into lows? I think your doing the right thing until you can contact a nurse or doctor. God knows how awful lows can be and if she's at school or a friends house when they happen it can be devestating! Bless her heart! Sounds like the dose is just too much for her. But its odd that she's running perfectly without insulin?? If I don't take both my insulins in in the 300 to 400 range! This is a question best answered by her doctor! Perhaps she should go to a endo and he can help her out because he is a specialist. Was she running high before her diagonsis?? How high was she running?? I'm glad she is accepting this well and has you to help her through. Try again at the doctors office and ask for a nurse demand to speak with one! Hopefully you can get some solid answers from the nurse. Please keep us posted on how your daughter is doing and what the doctor says. I'm curious what he decides to do?? Have a great day and good luck! God bless, I'll be looking for your next post on this.

Defeating Diabetes
Defeating Diabetes 2011-06-05 09:44:57 -0500 Report

I've been a diabetic for a while too and I never heard of it either. If I couldn't get in touch with my doctors office after leaving messages, I would consider switching to another one. Continue to check her BS often and keep snacks around.

mandymb 2011-06-05 10:37:23 -0500 Report

yeah we don't have any insurance…so we have to take her to this clinic that accepts ppl without insurance and pay a copay, or she wouldn't even be going there…that's also where i go and it's always like that!!!

pattroyka58 2011-06-06 13:37:26 -0500 Report

If it were my child, I'd be calling the state and accusing the Dr. of child endangerment! Of course, then the doc would stop seeing me and my kid, and we'd really be SOL.

marla50 2011-06-06 01:35:25 -0500 Report

I don't know what state u live in but as a child doesn't the state have to provide her with insurance? In Indiana they do. What about the diabetic center at your local hospital? Also maybe the American diabetes association might have some assistance.

mandymb 2011-06-06 18:34:52 -0500 Report

I have applied for medicaid for her and was denied…we are just a family of 3 and a family that size doen't have to make that much to be over income. They don't consider the medical expenses for me and her now…the system stinks! I asked what my options were and they referred me to this clinic. That is all we have until my husband is eligible for insurance at his job in November. We are in NC by the way. Thanks, I'll keep you posted.

Harlen 2011-06-05 09:34:35 -0500 Report

She may be making a little insulin on her own the best thing to do is test test and test till you get in to see the Doc
Best wishes

mandymb 2011-06-05 10:34:22 -0500 Report

Thanks, she is making enough that it is correcting everything on its own…so yeah we've been checking and checking and checking like 10-15 times a day

Harlen 2011-06-05 13:39:49 -0500 Report

I had the same thing but it only lasted 2 weeks I hope it last a lot longer for her .
When it started to taper off it did so fast .
I will pray that she will never need a insulin shot again .
Best wishes