the shakes/trembles with BG over 100

majikinfl
By majikinfl Latest Reply 2011-06-28 07:41:14 -0500
Started 2011-06-01 00:02:54 -0500

I was diagnosed just over 9 weeks ago. When I first came home from the hospital and while I was in the hospital as well…I would get the shakes and light headed, sometimes heart palpation's…with BG 110-120…I thought in time it would be better. However, I still get those feelings but its 100-110. I understand when my BG drops less than 80…but over 100? Anyone else have that? I am on a real tight budget right now so I cannot test whenever I want to so opt to only check before meals and at bedtime. I wake up a couple mornings [even after a nap when I sis not sleep well at night] a week with the sweats and trembling hands…sometimes so bad I can barely hold a cup much less a meter, etc. Sometimes I just down OJ or a Glucose tablet or three. I had thought the sweats were signs of High Glucose but learning its not so. My discharge nurse said my doctor will want to do a 14 hour fasting glucose…how is that possible when you have to drive and function? Anyone had to do that. I am quite anxious, my 1st appointment is next Wednesday. I know its a lot to ask in one post…Sure appreciate and thank all who reply :-) [ Little history: I am on Insulin/NPH morning and bedtime. also take blood pressure meds, all newly diagnosed 3/27/2011] Thanks


22 replies

Sly Kitty
Sly Kitty 2011-06-27 15:10:57 -0500 Report

Is it me cuz I am feeling very abnormal here. I have never had mine go higher than 178 and my low has never been lower than 100 (first morning reading) in the three years since diagnosed? I do however make sure I eat carbs every 2 hours. and throughout the day my readings are normal. I am tired all the time though and my doctor tells me that is because I am diabetic. This is not helping because I want to not feel sleepy all the time.

Gabby
GabbyPA 2011-06-28 03:17:58 -0500 Report

If your numbers are in that range, then I would not say that the sleepiness is "because you are diabetic". I hate it when doctors just spout that off. I would question your doctor some more. It's okay to disagree. You know your body better than he does. Tell him when you get sleepy. How long it lasts. What you suspect to be the problem.

I used to feel sleepy a lot, but my numbers were in the high 200's. Now that I don't see those numbers so much, I don't get hit with the sleepy monster.

Sly Kitty
Sly Kitty 2011-06-28 07:41:14 -0500 Report

Thanx; right now I am battling a great deal of stress as being laid off has put me in a state of limbo so I don't know if or when I will see a doctor until I can ge a job that has healthcare for me. I have always been please with her because she has all but taken me off all my meds because they made me sleepy and sick so I am on very little. I think I am just burnt out at this point, nothing 72 hrs of sleep wouldn't help.

elaine52
elaine52 2011-06-03 09:50:11 -0500 Report

I think (just my opinion) that when our bodies get use to our blood sugars being so high when we get it down to'normal' it feels like we are hitting a low. I know I am so use to being in the high numbers when I go down to the normal range that's how I feel. The lowest my sugars has ever gone is 40, I blacked out, and felt horrible for days afterward. I never want to experience that again, if I can help it. I would think just keep seeing your doctor and keep them informed of how you are feeling and reacting, and I think once you get accustomed to all the new meds and adjusted to your needs you will start to feel better…

majikinfl
majikinfl 2011-06-04 08:31:49 -0500 Report

Thanks…I hope so, it worries me most I guess because its been almost 3 months and I figured it would level out by now. Ever since the 2nd day in the hospital I have had these lows…and "knock wood" Zero highs above 200 and to me it seems strange since my sugar on admit was so high, and had potentially been extremely high during the past few months and my not knowing. In a big way it is of comfort to know I am not alone. I sure appreciate your and everyone else sharing their experiences. Makes it less scary…bless you all :-)

misselly
misselly 2011-06-03 09:37:17 -0500 Report

when i first started going under 100 I would basically not be able to see, eveyrthing would be cloudy and dark, I would treat immediately and my dr. told me that my body has to adjust to being in normal range again. the other day I tested and it was 88, I was shocked because I did not have any of the low signs that i usually get. I guess time helps

majikinfl
majikinfl 2011-06-04 08:34:38 -0500 Report

Oh My! that is very scary. I get varying degrees of blurriness to vision. In the beginning I could tell my sugar was above 130 because my vision would clear up, now not so much but still seems more blurry when low than high or normal. Thanks for sharing. :-)

nzingha
nzingha 2011-06-03 23:41:58 -0500 Report

I think u guys r right cause I am having the same feelings now that my levels r coming down… I guess they were so high that my body needs time to readjust to the new numbers… I feel a little nervous and sweaty…

PetiePal
PetiePal 2011-06-02 09:48:52 -0500 Report

Shakes, dizziness, lightheadedness etc all happened early on for me and it was more that my very high sugars were coming down to "normal levels" pretty fast. As your body adjusts to the new meds it may feel like this for awhile.

Keep in mind that you take insulin and that is a FAST counteracting glucose lowering med. When your sugar lowers quickly you can get the shakes, just like when it raises fast you can feel tired/lethargic!

majikinfl
majikinfl 2011-06-02 12:25:26 -0500 Report

Thanks, Its sure good to know I am not alone in my struggle. I cut one insulin all together…no doc til next week. I know he will not be thrilled but I was not thrilled with blood sugar in the 40's and 50's evertime I turned around. Appreciate your sharing…Have a great day…Polly

misselly
misselly 2011-06-03 09:40:12 -0500 Report

i have been as low as 58, my symptoms include blindness. Drs do not be around when you experience this. seems like you are taking too much insulin or not eating enough to support it.

realsis77
realsis77 2011-06-01 11:10:28 -0500 Report

Hi. I've never expirenced problems when I'm 110 or 120. My goal is to keep my BS 130 or under. However I do expirence problems at 300 to 400. I feel real sleepy and almost drunk. Perhaps your body is getting used to the lower numbers and its making you feel low? Id speak to my doctor about that. I DO however feel that way when I AM low, at 59 or 60. Then I expirence shakes sweats everything you have talked about and I need to bring up my sugar. I'm on two different insulins, one 24 hour insulin I take in the am and one I take with meals. I suggest you go to wallmart and buy the cheap meter because those strips are very affordable and you defiently NEED to be testing! Its very important! My doc wants me to test 4 times a day. Ask your doctor how often he wants you to test. This way you know where your at through out the day.I wish you the very best on your test and look foward to future postings from you. It can be overwhelming at first, I know but keep comming back to this site and you will receive lots of support! Do some reasearch learn as much as you can about diabetes. Knowledge is power! They have some really great books out their for newly diagnosed diabetics. I bought a few for myself off amazon.com. they have many titiles to choose from and they are Wonderful tools for the newly diagnosed diabetic. The books are soo informative! I highly recomend you get a couple of titles. They are made just for diabetes who are newly diagnosed and they really helped me learn a lot!!! They are not expensive and they are delivered quickly.they answer so many questions I had! There a wonderful tool! Just look up diabetic books on amazon and many titles appear. You can choose from many different ones. I choose the ones for the newly diagnosed . They were great! I know your overwhelmed now but I promise it gets better. Hang in there and good luck! Welcome to DC ! I hope I've helped in some small way! God bless!

majikinfl
majikinfl 2011-06-01 13:24:09 -0500 Report

Thanks for your input. I have a couple books and read a lot on line, WebMD, Mayo Clinic, NIH, Any hospital that has information…I pretty much stay clear of sites that have no medical input. Here is good, ADA site is ok but a little confusing sometimes. There are a couple medical Professional sites I look at to get search Ideas. I love Amazon they have everything, you could ever want IF you have $$$ to buy. I do appreciate you taking the time to write and offer help. Have a great day and again thanks…Polly

PS I do test 4+ times a day and if I need a middle of the night test I will skip a lunch or dinner one as I take no medication then. Insurance starts today so hopefully I will get more stuff at much less cost.

realsis77
realsis77 2011-06-01 15:52:35 -0500 Report

That's great your insurance kicks in today! That will be a big help! If I can help in any way just ask! Good luck and hang in there!

JoleneAL
JoleneAL 2011-06-01 09:45:59 -0500 Report

Hello! The 14 hour fasting glucose is intimidating, unless you think of it this way. You sleep 8 hours (or should try too) so part of that time is knocked out. I think nurses and doctor's use wording they don't realize scares the snot out of us!

I am going through the same thing you are right now - again. I did a bad thing and ignored my diabetes for about a year (took meds, did little else) and now I'm having to bring the highs back down again. I get to 90 and I feel like I'm crashing!! You'll get it!

majikinfl
majikinfl 2011-06-01 10:33:48 -0500 Report

Thanks, I know pros don't talk to us they talk AT us. Here's hoping you continue on a good path and I can keep the highs at bay. Have a good one…Polly

Gabby
GabbyPA 2011-06-01 00:16:51 -0500 Report

Sounds like your insulin is doing a very good job....maybe too good. I would suggest calling the doctor and letting them know what is happening. It sounds like you are struggling with lows.

Now, having said that. When our bodies are used to higher numbers. A 100 may make you feel low until you get used to that being more normal again. I remember the first time I went below 100 I started to feel funny. I thought I was going low...I was 95. Oh well. So I just waited it out to make sure I did not continue to drop and soon I felt okay. I didn't treat. You always want to test before you treat. It would be bad if you were having a high and felt is was low and treated for a low...always know where your numbers are before treating.

If you treat, wait 15 minutes and test before treating again. I know you are tight on strips, but a low or high is the time to test. You want to always test before. Specially since it is still very new to you.

majikinfl
majikinfl 2011-06-01 00:41:28 -0500 Report

Thanks Gabby, i will bring this up when I see the MD next Wednesday. Basically have no Doc right now. I will do the test when I feel like that as I am not on a sliding scale right now…I do have regular Insulin just incase i spike a real high. I was having toooooo many low low >60 so stopped the regular until I see the new doc. Fear low more than high right now.

Gabby
GabbyPA 2011-06-03 09:25:20 -0500 Report

I agree. I fear lows much more than I do the high. I guess because my highest has been 425. Bad, but I was still quite able to deal with things. Going low really scares me.

misselly
misselly 2011-06-03 09:56:17 -0500 Report

fearing low's are my problem also. I have never to my knowledge been over 500. I have heard of much higher though. I am sure higher than will comatose me. I am really trying hard. But I donl't think people understand how hard this is to control. At least it is for me. This forum is great help

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