Misunderstandment

Starry20
By Starry20 Latest Reply 2011-08-21 14:27:45 -0500
Started 2011-05-31 09:34:13 -0500

I don't know if anyone else feels like this but my family and doctor are constantly trying to get me to say how I fell while low or high but they just don't seem to understand what I say or it's too complicated to explain because they just don't have the feeling that I have… Does anyone else feel like this??


29 replies

Jerry Koontz
Jerry Koontz 2011-08-21 14:27:45 -0500 Report

I have some good news, Apple is comimg up with a app for a IPhone and a small tattoo on your body with no color, the stuff that makes-up the tattoo can read your blood sugar anytime you want. No sticks?No pricks to the finger? and cost, nothing to what the sticks cost $1 ea or more. I think my VA will be very happy too. I test every 2 to 3 hrs in the day. This was in Diabetic Connect Aug 20 newsletter

Jerry Koontz
Jerry Koontz 2011-08-06 16:32:47 -0500 Report

I'm new here
What I tell them is, when I'm low or very low, what is happening is Lack of Oxygen to the brain, Oxygen is been cut off to the brain, that is why you seem drunk and this is very dangerous. I tell them the best thing to give me is Orange Juice Or Coke and never never try and give me a shot, For some reasion people think I need a shot ( this comes from TV Cop Shows )
I am very lucky because I use VA for my medical and my diabectic doctor is great the hospital is great and I'm healthy for it. Back to your question I just now saw your photo, (your a little girl), Tell them for high sugars, tell your friends that when your breath is bad , this is from high sugars. then tell them,
let me know so I can check my sugar. tell them I feal nothing when my sugar is high but it is bad for me. The more you tell your friends, the more they will help, remember they want to help but are afraid so you have to help them.
Do you go to a diabetic clinic or just a doctor? is your DR a diabetic DR?
Do not worry In this day and age you can have a very normal life.When I was 30 years old My friends daughter was diabectic I think 6 or 7 years old now I'm 66 and she and her husband live in Guadamala they have a internet business and her diabetees is well under controll. I'm so happy for her!
I'm happy to meet you Jerry

purple1900
purple1900 2011-08-06 23:17:40 -0500 Report

Jerry its nice to meet someone else that uses the VA for diabetic needs I have the best doctors at my VA and when I was diagnosed with diabetes during an ER visit my prime care doctor called me at home to follow up on what needed to be done next

Jerry Koontz
Jerry Koontz 2011-08-07 02:01:43 -0500 Report

Do you use the SF VA?
If I have a problem I can send my DR a quick e-mail
Someday I'll talk about my 1st doctor (not good)
VA is the best

purple1900
purple1900 2011-08-07 10:49:30 -0500 Report

I use the Dayton, OH VA I have used other VA's and the Dayton one is the best I have used before. I have that kind of relationship with my doctor. I don't have her email but if I have a problem I can call and leave a message and either her or her nurse will call me back. I also can usually get into her for an appt if I call and say what is going on she will squeeze me in so I don't have to go through the ER

ShermanS3
ShermanS3 2011-08-07 16:56:16 -0500 Report

I was just diagnosed by the Prescott, AZ VA. They've taken such good care of everything else that I have absolute faith in them to take care of my diabetes, also.

iceman71962
iceman71962 2011-08-06 14:42:22 -0500 Report

I know exactly how you feel unless you have been there you don't know how it feels and can't really explain it to some one else how ever its worse to me to constantly be told what i can and can't eat like i was a child that needed constant supervision.

Lorna-1
Lorna-1 2011-08-06 11:42:42 -0500 Report

I agree with everyone on here unless your Diabetic it is hard to describe what we go through… I have massive headaches after I have a really bad low and feel really tired if I am high … doesen't help at all when they say well maybe your just not getting enough sleep…

sunshine247
sunshine247 2011-06-02 09:44:04 -0500 Report

My suggestion is to go to www.diabetes.org or to the American Diabetes Association website with your family and look up the symptoms and any other information they have questions about. These are great resources for any diabetic.

Pynetree
Pynetree 2011-06-01 11:37:46 -0500 Report

I just think that the hardest thing to describe is "a feeling". And to describe a High or a Low BG feeling is tough…because YOU are not even aware sometimes that your BG is off.
I know that when I'm low..I get shaky, and stupid! Once ran in grabbed a can of coke when I was low…but grabbed DIET coke…not much help! LOL!
But Language is lacking when we have to describe a feeling. ..but just keep talking…share a lot…the more you try communicating the easier it will be for them to "GET IT". Good Luck!

Dr Gary
Dr GaryCA 2011-06-01 11:12:36 -0500 Report

Hey Raven,

So sorry to hear that you are going through this with your family and your doctor. Sometimes people can't hear what we are trying to say to them, even though we are speaking the same language. It may be that they don't understand the way that you are describing your symptoms.

Also, your family members may be having difficulty accepting that you are diabetic, or that you don't feel well. It may be hard for them to hear when you feel badly because they don't know what to do about it. You may need to give them some education along the way.

Here is a post that I started awhile back that you might find helpful:

http://www.diabeticconnect.com/discussions/10618-patient-education-whats-your-technique

Sometimes communication takes time and patience. If you keep at it, and they do to, you may come to the point where you are all on the same page.

Keep us posted!

Take care,

Gary

Starry20
Starry20 2011-06-01 14:18:44 -0500 Report

My mom is smart and has knowledge, but I just can't find the right words, and I've only ever seen my doc. Once, the rest is his da I think, but they try, it's just they hear it differently than I say it… It's confusing, but thank you for your help… :)

Gabby
GabbyPA 2011-06-03 09:29:06 -0500 Report

I agree with Dr. Gary. You have to make them understand. Sometimes you have to border on being a pain in the butt to get your point across. I have had to do that with my doctor a few times. Being here has helped me gain a confident voice when dealing with my health care team. You are your own best advocate.

Dr Gary
Dr GaryCA 2011-06-01 22:10:37 -0500 Report

I would just encourage you to be patient, keep at it with them. Show them as well as tell them. Sometimes people have to be told repeatedly before they finally get it.

Trudie Ann
Trudie Ann 2011-06-01 01:28:06 -0500 Report

My biggest problem with someone misunderstanding me is usually with the younger generation. Not because they don't know anything about diabetes, but because we don't always speak the same language. Even people my own age that are from different back grounds and different parts of the country. We all have different termanolgy and different ways of expressing ourselves. Some words have different meanings to different people. for example the other day a young person asked me how I was doing and I said I'm gay. You should have seen her face. I tried to explain that I meant happy. I think ( I hope ) she finally understood.

scribbles
scribbles 2011-05-31 16:47:17 -0500 Report

I think (hope hope) that your doctor is asking how you feel because the warning signs of dangerous lows can change with time. Your body can get used to the highs and not let anyone know. You can also get your body used to it and go from low to seizure or worse - with no warning. It takes time for all this to happen.
Your mother is probably asking because she does not understand and/or some medical person has terrified her. The way I calmed my husband down was to teach him to test me and what to do if I was low. We 'practice' every 5/6 weeks, or whenever he gets nervous about it.

Sweet Potatoe
Sweet Potatoe 2011-05-31 14:22:17 -0500 Report

I guess I'm one of the lucky diabetics. My husband's mother was type 2 so he knows when I'm low by my actions. He's really a great person whose concerned about me, the kids and close family. I love him for that…

Cookie Roma
Cookie Roma 2011-05-31 12:56:00 -0500 Report

Geeeez. Do I get it! I've been diabetic for 2 years. A couple of weeks I asked my husband if he knew what to do if I got very low bs. First he got the "deer in the headlights" look. Then he gave me some weird answer that had nothing to do with reality. I explained to what really needed to be done but I have absolutely no confidence that he would have a clue as to what to do. The only thing my family is worried about is that I won't cook their favorite meals.

JoleneAL
JoleneAL 2011-06-01 11:57:30 -0500 Report

(super hugs) I found out by accident that DH pays attention!! He got up from the couch one day, went in the bathroom and got a glucose tube and handed it to me and said, "Take 2, you're grey and sweating." I didn't even notice as I was on the computer playing a game. When I refocused I felt it. Also, he watches people around him and has caught some people he works with crashing.

Gabby
GabbyPA 2011-05-31 23:00:02 -0500 Report

That is sad. This is something that you really need to drill home to them. There is a member here who had a low in church and all her family and friends stood around and watched her on the floor....it was her 9 year old daughter who knew what to do. We need to make sure people around us know what to do or at least know where to find instructions we leave them to help them help you. It needs to be taken very seriously.

Cookie Roma
Cookie Roma 2011-05-31 23:19:41 -0500 Report

Gabby I know it needs to be taken very seriously. Don't misunderstand me, my husband and kids love me. My husband has a panic disorder (he claims ge doesn't have it anymore. Seeing him during even a slight emergency kinda kills that argument) and my kids seem to think it's stupid because "they've met people with diabetes before". Not sure what that means . So this is my problem and I need to deal with it and leave them out of it.

Gabby
GabbyPA 2011-05-31 23:41:21 -0500 Report

I didn't mean to sound like I was attacking you or your family. I'm sorry if it came across that way.

What about a close friend? I kind of understand the issue with your husband and without knowing how old your kids are, there could be a reason to leave them out. But if it were not for this 9 year old girl, she could have lost her mother in a sea of ignorant people. Teach your child. They may not understand, but if you teach them enough, when the time comes, they may surprise you. Oh...you have inspired another discussion. Thanks!!

realsis77
realsis77 2011-05-31 10:32:25 -0500 Report

I don't think non diabetics understand the things we feel or go through. I do my best to explain the feelings and I think they do their best to understand, but unless you have actually expirenced it, its very hard to understand. Just explain it the best you can. But there is really no way for non diabetics to completely understand because they have never actually expirenced the things we go through. Although its possiable for them to see and know when we are low or high. Its strange but my husband knows I'm low before I do by my speech. So there are little signs we give off that we might not even know were doing. So its not impossiable for them to detect a problem before we even know were low or high. My husband is amazing when it comes to dececting my lows. Although they have never themself expirenced it.

Starry20
Starry20 2011-05-31 14:27:23 -0500 Report

One of my best friends can tell when I'm low or high and is ALWAYS asking what my bs is.. And when my friends get confused on something he tells them of befor I have time to think… He's great… :) and j get temperamental when I'm high but he's always supportive.. And he has been since 3rd grade…

Starry20
Starry20 2011-06-01 14:21:05 -0500 Report

Thank u all for your help, I will try a different tactic next visit

kittykat69
kittykat69 2011-08-05 09:17:04 -0500 Report

I have a 2 yr old and a 5 yr old they don't understand what diabeties is but they know how to react if I'm high or low. they remind me to take my medicine and to check my blood sugar level. They know what could happen if it is high or low .I started teaching them when they first started talking .I explain it to them in a way they cAn understand. I have been diabetic over half my life. Just be patient and try to use imagery or colorss to describe how you feel if I'm high i say i feel red if i'm low i say i feel blue. If i'm ok i say i'm yellow.

Gabby
GabbyPA 2011-08-06 09:26:10 -0500 Report

What a wonderful way to teach the kids. Would you share that in a new discussion with everyone. I think that would help so many of the parents here to teach their children in a "not so scary" way. So many parents don't share the "burden" with their kids, but they may be the only ones to save you one day. It is better than to make them orphans in some way.

Gwen Morten
Gwen Morten 2011-08-06 12:13:29 -0500 Report

I agree! I have teenages basically didnt seem to get it other than trying to monitor what im eating like no sweets ever! lil! so I gathered the 3 of them up and taught them how to check bs by doing ec other and drilling them on what to do if I was ever unresponsive or out of it in some way. It was fun!