Does anyone have daily highs and lows?

By ryguy1 Latest Reply 2011-04-18 08:05:39 -0500
Started 2011-04-16 13:24:47 -0500

I am very frustrated as I seem to go over 200 at least once (if not more) a day and I drop low at least once (if not more) a day. I have some weeks though where I can have decent levels but those seem to be few and far between. Does anyone else deal with highs and lows on a daily basis? When I see the diabetes educators they never tell me that other people have this issue. All they say is, "we know, diabetes is hard to control." But they never say that other people are dealing with daily highs and lows. They tell me that my levels are "actually pretty good," But then also tell me that I need to stop the lows and get out of the 200's and only have one or two acceptable levels per day. When they say all these things I feel like I'm the only person in the world that is not capable of getting good control of my diabetes and it frustrates me even though I eat very healthy, work out regularly, and my insulin pump is set exactly to the doctors and educators directions. So, does anyone else deal with daily hight and lows? Or am I really of extremely few that has this problem?

7 replies

MarkS 2011-04-18 08:05:39 -0500 Report

Hey rguy 1. No, you are not alone. This past Saturday I woke around 6 AM feeling ready to conquer the world, tested my blood sugar, which registered at 114. I decided not to eat at that time (I'm on a pump with a glucose sensor), figuring that I would catch a bite of breakfast later when hungry. Well, about two hours later when feeling a bit hungry, I checked my blood sugar and it was 211 (my sensor read 184). All I'd had since my initial reading of 114 and my pre-breakfast bood sugar of 211 was a cup of black coffee. My readings were high throughout the day though started to come down around 3 PM and were back (therefore, I concluded that the cause of my highs were not due to my injection site or pump delivery). My wife, who's a nurse, is convinced that a lot of my high fluctuations are a result of minor viral infarctions (not really an infection) that our bodies are hit with on a daily basis, with most being handled by our immune system. It just so happens that in the process of inactiviating the virus as diabetics our blood sugar rises while a non-diabetic does not have that same phenomena. I think this is an interesting theory but no data to either prove or disprove. As for the lows, I have my fair share and can't always tell when they are occurring, though the glucose sensor has been a godsend for that. And, as I'm sure you know, those high fatty meals lead to highs about 8 hours after eating - and the dual wave boluse sure helps with those (espcially for meals like Indian cuisine or barbecued ribs). Cheers and good luck. Mark

rcmodelr 2011-04-17 03:53:43 -0500 Report

Since diagnosed as Type 1 Diabetes, I've almost exclusively limited my meal choices to products I could toss into the microwave or toaster oven, and find the nutritional info on the package labelling… It's much easier for me that way… But I still sometimes stop at local restaurants for food… But I've limited my local restaurant choices to those who either provide nutritional info in the restaurant location (if I choose to eat at the location), or a place that has nutritional info provide ONLINE, but NOT on location if I'm planning on taking the meal home to eat…

If a restaurant location won't provide me with nutritional info on their menu items, then I will GO ELSEWHERE, or, if I KNOW they provide that info online, I'll order the meal "To Go", then wait until I get home and can check online for the nutritional content of the meal I ordered…

If places like Captain D's, Long John Silver, or Burger King wanted ME to dine there, they would provide their nutritional information either at an ONLINE KIOSK IN EVERY RESTAURANT, or they would provide that info in printed documentation in the local location… LJS isn't located nearby, so no loss to them… Mc. Donald's provides nutritional info on most of their product packaging, but I prefer BK… BK provides SOME nutritional info in the local location, but not really enough to determine how much Insulin I'll need…

Due to restaurant's LACKING nutritional info, if I order food from a restaurant, it will normally be from Captain D's, which I can find nutritional info online for, Mc Donald's, which I can find the same info on the product packaging… OR, if left with no other option, I'll choose one of the two Chinese Buffet locations within a few blocks from here… Sure, I'm left GUESSING on the needed Bolus Dosages needed, but at least so far, I've been coming very close in estimate for those places to how much Insulin I really needed to compensate/correct for the meal I just ate…

rcmodelr 2011-04-17 03:36:23 -0500 Report

I think no matter how well anybody with Type 1 Diabetes handles their situation, we ALL face this SAME problem… It seems to be an almost constant "guessing game" as to what causes the un-desired readings… Some days, I'll wake up in desired BG range, Bolus, eat, & BG will remain within my desired ranges… Other days, I'll wake up with slightly elevated BG reading, tell my Pump to deliver a corresponding Bolus dose, and no matter how hard I try, even skipping meals, I'll be 100% unable to get my BG back to a desireable range… (Some other days, I'll wake up to lower than desired BG levels, and it will seem that no matter what I try, my BG ABSOLUETLY REFUSES to rise to where it "needs to be.")

Every Human Body reacts DIFFERENTLY to situations, even if they are the SAME situation… Therefore, the ONLY way to find what will work with YOU is to track your dosages and BG results, MAYBE consult your CDE, then make adjustments to your dosages…

In MY case, my GP, my Endo, AND my CDE have ALL told me I'm managing my condition better than they could ever hope to manage it, so have told me "Continue what you're doing, and contact us if you have any problems."

jayabee52 2011-04-16 15:27:12 -0500 Report

NO you're not the only person who has experienced this, RY.

I experienced this for a while also. The discussions here are full of people who are like you struggling with the roller-coaster of diabetes ("DM").

How are you trying to control your roller-coaster? You don't say on your profile as to what type DM you have, but from your age and when you were first Dx'd I would guess it's type 1. Usually t1s are on injected insulin regimen of some type.

The variables are your dose of insulin, the type of insulin you're using, and your intake of food and drinks.

With the food and drinks, you must "eat to your meter".

To do that you have to determine what foods/drinks do to YOUR Blood Glucose numbers ("BG#s"), as DM is not a one-size-fits-all condition.

To find out what certain consumables do to YOUR BG#s you need to do a BG# test for a "baseline". Find the portion size of whatever you want to test. You can find portion sizes on the nutrition information of the package it comes in, or for things like fresh fruits or veggies, you can find a website that gives nutrition information like

Eat a serving of whatever it is you want to test (better if it is a single item, not a mixture of foods) then 2 hrs after you take your first bite, test again.

If your BG# is 50 points or higher than your baseline, you have 2 choices: If it's very much over 50 points, then it is best to avoid it. If its closer to 50 points, then perhaps retest in a day or so, with half a serving.

One suggestion is to get a 3 ring binder and paper for it, and to write down what foods you have tested, your baseline BG and your post-prandial (2 hrs after) BG#

And if you re test a substance, what the results were for that. That way you have a reference and do not forget. I have used one page for each substance I have tested.

This is learning about YOU and how your body reacts to certain substances. Yes it is a lot of testing, and it takes a while to get an idea of what spikes your BG#s and what moves them only a little. I believe it's well worth the effort to determine your eating plan tailored to your body.

If you're eating plan is under control, then see your DM care team for you to adjust your medication dosages. They can give you longer or shorter acting insulins, and sliding scale instructions how to use them.

I pray you can get off this rollercoaster onto solid ground with your BG#s

Blessings to you and yours!


Harlen 2011-04-16 15:15:28 -0500 Report

Hello and welcome
I to am on the pump for me it seams that the better I count carbs the better my #s keep in line .
You may wish to right every thing down what you eat how much of it you eat and yes I use a scale
It works for me very well
Best wishes

realsis77 2011-04-16 13:36:32 -0500 Report

Hi. I've been pretty lucky. If I take my insulin on time I'm usually ok. I do deal with highs and lows even now and again but for the most part with my insulin I'm pretty steady. If I forget to eat I will go low so I try and stay pretty scheduled on my meals. Id discuss this with your doc and see if he can help if its regular. I wish you the best and hopefully you will get this under control soon!

Next Discussion: need some info »