Newly Diagnosed...

By Cb44 Latest Reply 2011-04-20 23:50:43 -0500
Started 2011-04-14 10:30:23 -0500

I am 24 and I am having a rough time with my new diagnosis. The main reason I am having such a hard time is because the doctors still have no idea if I am a type 1 or 2. My journey with diabetes started in april 2010 as a gestational diabetic. After having my son in July I went back in sept. 2011 and was told I was NOT a diabetic…In feb. 2011 I was diagnosed as a type 2, March 2011 I was diagnosed as a type 1, April 2011 type 2…

My AIC in Feb. was 7.9
A1C in March 7.5 Diet controlled'
AiC in April was 7.3 Insulin…
The reason for the last change was that my C peptide came up (does not seem to to fit type on) frim .83 to 1.80.
Just wondering if anyone can make sense of any of this or if anyone had any advise for me…Thanks!

8 replies

shayandallisha 2011-04-20 23:50:43 -0500 Report

Hi - I have say here and read all replies. I would really like to know more about your condition, and what you're going through, because it sounds like you and I have the same concerns/questions. I had gestational diabetes with all 3 of my children, and with my third one (born in Sept 2010), my blood sugar levels never went down. So I've been on insulin ever since then. Now, I'm on Lantus (14 units) and sliding scale of Humulin R. I don't like taking Humulin R. Like you, I can take 2 units, and it can drop my sugar into the 50s. I can't figure out if I have type 1 or type 2. My Dr. can't answer that question…she says type 2, but she can't explain to me why it would be type 2. What is an insulin-sensitive type 2, anyway? Is it when your sugar drops right away when you take insulin?
Anyway, I have no family history, I'm normal weight, no reason for me to be type 2, in my opinion. I've been looking into the type 1.5, which sounds like me. I hope we can keep in touch!

Harlen 2011-04-14 18:05:08 -0500 Report

Hello and welcome
You are T2 .
There is a T1.5 too they make some insulin from time to time
Best wishes

kdroberts 2011-04-14 10:52:20 -0500 Report

As of now it would seem you are an insulin sensitive type 2. However, you haven't had all the tests done that would help prove type 1. Ask for GAD65, GAD67, islet cell antibody and insulin antibody tests. That will give you a pretty good idea. Also remember, it's not just type 1 or type 2, there are other types like LADA and all the different MODY types. You should also look up "honeymoon phase"

The best advice I can give is forget about what type you are and just work on getting your blood sugars in range. If you are using insulin, diet, exercise, pills, whatever and your blood sugar is good, it really doesn't matter too much. If something starts to not work, you just switch to something else. Eventually you will get the answers you want but chances are that by then it won't make any difference to your treatment. It took 2 years (or maybe 3, can't remember) for me to get an official diagnosis but when I did nothing changed.

Cb44 2011-04-14 11:27:33 -0500 Report

Thanks. I was unaware about the other types, I will do some research. I am waiting to see an ENDO, my apt is in May. The only thing I hate most about them changing my diagnosis is that each time do they also change my meds. I was taken off metformin due to a reaction I had and it was really helping now I have to go back to Novalog because levimeir alone is not working. I wish they would put me back on a pill form…

kdroberts 2011-04-14 11:36:32 -0500 Report

Insulin does give you a lot more freedom but I can understand why some people are not enthused. One thing you should ask about is trying samples of humalog and apidra. They are similar to novolog but usually one of them works a lot better for people than the others.

Cb44 2011-04-14 11:52:05 -0500 Report

I dont mind insulin but I have so many lows with the fast acting (even on 2 units with meals) I really feel that insulin is safer than meds(especially after my reaction to metformin) but I just cant seem to get mine lined out. The doctor (PCP) is not helping much either. When I was pregnant I was on humalog and humilin and they were great I cant say the same about levimier and novalog. My PCP mentioned Victoza but I have not had time to research it.

kdroberts 2011-04-14 12:06:05 -0500 Report

If you are getting lows then definitely try apidra, it works very quickly and (for me) stops working about an hour before novolog does. You may also want to test lantus instead of levemir since it doesn't have such a peak.

Oh, and if you liked humalog (and don't like apidra) see if you can get the humapen luxura HD. It allows you to dose in half units and that reduced my lows considerably. I prefer apidra as an insulin but you can't get a pen that doses half units with it.

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