What can you tell me about neuropathy?

By kimod1013 Latest Reply 2011-04-08 16:38:21 -0500
Started 2011-04-07 01:37:00 -0500

Can your fingers and hands start feeling numb? What meds work? Can it be reversed at all? My feet are numb, prickly, and hurt to walk on. The worst is the tops of the feet…PAINFUL. Hurts to put a sheet over them! I know I have it in my feet but just today I am having some numbness in my right palm and some fingers. Doctor appt. on the 12th!

19 replies

Marlwood 2011-04-08 16:38:21 -0500 Report

It sounds unusual, judging by these comments, but neuropathy CAN fade a great deal; at least it did for me. My lightning pain was bad and almost constant, on a scale of 1-10, being AAAAAAH!, mine was 8; I0, when my niece or famliy dog stepped on them, which was often. Now it is only about a 6, and only when I have been on them for several hours. and some of that is my flat feet.

I am rambling, I know, but diabetic neuropathy can get better. Are your glucose levels under control, or stable? My record high was almost 500; when it dropped under about 300, my feet, and my eyes, too, were a lot better. there are specific painkillers for this, too.

Hope that you feel better soon!

knit57 2011-04-08 10:43:53 -0500 Report

I am new to this site, so I am sure I will be repeating what you already know..

I started having numb toes at elast 8 years ago. Told at least 6 Drs. my toes are numb. All looked at me, nodded and went on - not one said are you diabetic, or you might be diabetic. About 2 years ago I took a free cholesteral test the local hospital offered. My cholesteral was high, my BP was high and my sugar was 125. So I joined weight watchers, lost 20 pounds, took the test again. My cholesteral was high, by BP was high and my sugar was 124. i called my PCP, took him both test results, said I think I have a problem. He said you are diabetic. Put me on Cholesteral meds, BP meds and Metform. Told him my toes are numb. No response. My A1C was 6.8 that day. Went back in 6 months. A1C was 6.8.. BP was down, Cholesteral was way down. Told him - listen to me, my toes are numb. Very numb, I feel like lightening is stricking my toes. He said, you have advanced neuropathy and gave me Gabapertin. He said it will never go away, it will only get worse if you don't tightly control your BS - come back in 6 motnhs Okay - now what??? I don't feel the lightening much anymore, but have nights when I can't stand to have the sheet touching my feet. My feet burn most of the time, I can't walk in socks - just having a sock on gives me pain. I have tried diabetic socks & 100% cotton. I am a knitter, so I am trying various fibers to see if I can tollerate any of them.

kimod1013 2011-04-08 11:08:20 -0500 Report

Welcome, Welcome, Welcome -this is the best place to be! I am so sorry it took so long for you to be diagnoised! I was at my yearly womans doctor and she routinely does lab work for diabetes on every patient. She is the one who diagnoised me. Totally a fluke. I was blown away. I had no clue! You know my feet will get sooo cold and even though they hurt I put on SOFT socks and within minutes they are hot and I have to take them off. Your right sometimes the socks hurt too bad to even put on. Catch 22! I know you will be glad you found DC!

cajunrbuckeye 2011-04-07 21:25:12 -0500 Report

I just had a checkup yesterday and i have the same thing with my feet, and my doctor did the same test on me and said i could take a pill for it or wait till the next checkup, she said it could be b1 missing from my diet. said there was a pill i could take but i take 12 pills a day and thought against it now. but it wakes me up at night and the only thing that will stop the burning is to put lotion on my feet. and that is two times a night lately. i have quit sleeping with covers cause of the pain that it causes. Hope eveyone has a good weekend…

Armourer 2011-04-07 20:41:11 -0500 Report

The neuropathy started in my feet on the out-sides and is slowly moving inwards. Now the balls of my feet are numb and my outside two toes. In the last year it has moved to the outsides of my hands and fingers. I just got neurotin 300 mg twice a day and meloxicam 15mg. Helps. Neurotin needs to be taken with food.

GabbyPA 2011-04-07 20:17:00 -0500 Report

I had a visit with my podiatrist the other day and learned a few new details on this.

I have had the burning, tingle, and gravel in the souls of my feet for years. That is what lead me to test and the rest is history. Now I, from all I had read and discussed, thought I had neuropathy. That is not always the case.

What my doctor said to me is that I do have it starting in my big toes. He touched my pinkie toes and then my big toes. I still feel in my big toe, but not as much as my pinkies, so that is the start. He says it typically begins in the big toe.

So I asked him about all the other discomforts that come with this and he said that it is connected to our sugar levels and how they scramble our nerves. They send conflicting messages to our brain and cause us the most issue when we are trying to rest. (Boy do we all know that) As KD said, with tighter control, that can lessen and improve if you do it prior to the permanent damage being done.

I have been taking 600 mg of Alpha Lipoic Acid every day for over a month and even with working on my feet all day 3 days a week, I have found less need for pain relief. I have worked on getting better glucose levels and when I get to where I can stay below 140 I am sure I will see even more improvement.

harleysmomma2340 2011-04-07 19:45:23 -0500 Report

Hi im new here and i have neuropothy in both my feet and starting in my hands i have an emg schecduled for the 25th to confirm it. right now i take 300mg neurotin three times a day and it really helps alot! and they can adjust it as needed. i started off on just 100mg twice aday. but over the last year my feet have been getting worse. also i suggest seeing a podiatrist i saw one last month and qulafied for diabetic shoes just got then one week ago and my fee t are already feeling better! best part is they have a nice selction and some are quite cute and stylis even my picky 17 year old neice though mine were cute lol. hope this helps.

Dixiemom 2011-04-07 12:07:47 -0500 Report

I sympathize with you. My neuropathy is going on 11 years. It started with tingling i n the hands and feet, erratic walking, falling and dropping a lot of things. after undergoing extensive tests they didn't put me on any meds. Basically tolod me they can.t do anything for it. I did go through IV gamma globulin which gave some short time relief but caused a migraine so that nwas dc'd. I've done PT for gait training and balance. One of my biggest fears is falling. I have no warning when I fall, I just go down. this latest neuroligiszt has put me on Cymbalta for the pain in my feet and it has helped. Perhaps you should ask yours if they thought it would work for you.

kdroberts 2011-04-07 10:35:56 -0500 Report

Neuropathy is basically your nerves dying/being damaged and can happen to any nerve in the body. Fingers and toes is peripheral neuropathy but there are other types. The best treatment you can do for it is keep blood sugars as close to normal as you can, that means normal normal, not diabetic recommendation normal. Something like under 100 all the time would likely lead to a dramatic improvement but if you can keep under 140 after eating and under 100 fasting and before eating you should also see significant improvement. The higher your blood sugar goes the less improvement you will see and once it gets up over 180 or so you will start to see it get worse. The higher you go the faster it will get worse. Some prescription meds like lyrica are given to people with neuropathy, it seems to have mixed results. A lot of people use alpha lipoic acid (ALA) to help with neuropathy pain. Again, results are mixed but generally people see some improvement.

It's not 100% true but generally speaking peripheral neuropathy will come in pairs, if you have it in one foot/hand you will have it in the other. That makes the numbness in one hand curious and possibly not related to neuropathy. It would be best to see your doctor.

kimod1013 2011-04-07 10:44:14 -0500 Report

It literally just started being noticable. This morning I feel numbness in my left palm also. It's stronger in my right though. I'm on 2000 mg. of Cinnamon and 300 mg. of ADA. I think I need to go up on my dosage of ADA though. I saw on someones post they were taking 1200 mg. Any thoughts?

kdroberts 2011-04-07 10:55:12 -0500 Report

I don't know about ALA doses, I just know there aren't any or many studies of long term use in the higher up daily doses. Cinnamon likely won't do much in general and nothing for neuropathy. It's actually been shown to make it worse but not in very many studies so take that with a pinch of salt. The biggest help though would be blood sugar control, generally lower with smaller spikes. How are yours running?

rentintin 2011-04-07 10:20:54 -0500 Report

Sure there are things that can help. Ive had it and as my bg numbers get lower my symptoms get better, So diet helps but I know thee are meds too. Wish you well and dont give up.

Sngbook 2011-04-07 07:47:13 -0500 Report

Hi, I'm new here but have "some" of the same problems you are having. I have the peripheral neuropathy also numbness in my hands. Some days are good, others it depends because I'm developing some arthritis in them, too. I am on Neurontin 600 mgs. twice a day for the nerve pain and Naproxen for the inflammation. My feet haven't gotten that bad, yet, but do have some pain every once in a while. It could be you might have P.A.D.(Peripheral Artery Disease) so you really need to talk to your doctor about that. I hope it's not that. Hope I helped!!

Anonymous 2011-04-07 13:04:41 -0500 Report

I feel wonderful—having found a section on peripheral neuropathy and diabetes. For years after mine started, I didn't know, and neither did any of my doctors, what was wrong with me, but when I moved down to Florida, I was sent to a neurologist who told me that's what I had, and there wasn't much he could do (He was a little like "House") At least he gave me some Neurontin, which does help. I still kept on with my beloved little theatre, which I've loved all my life—-until the pain in my feet from too many stress fractures (Do any of you have that problem?) brought me from onstage to down in the director's chair, but at least I'm still involved.
I'm in a motor chair full time now, but I don't miss too much—and move much faster!

harleysmomma2340 2011-04-07 21:52:13 -0500 Report

i know with me both my hand and feet are affected. My feet are much worse then my hands especially when they start to swell and then they really ache. my left hand is worse then the right i do use my tens unit on my hand and sometimes on my feet sometimes it hurts worse to use the tens unit sometimes it feels good if your not familair with it it has four pads that you place on you body where your having pain and it send electric charges that kinda feels like a massage. I was on cymbalta for qutie awhile my psch docter gave it as a multi purpose drug to treat my deppression and pain it worked well until it sent my liver enzymes to triple the normal levels and i had to go off of it. the neurotin works well though.