The bad moments...

Chris92
By Chris92 Latest Reply 2011-03-31 00:53:42 -0500
Started 2011-03-27 17:09:14 -0500

Even though I have replied to these sort of posts in the past and tried to give uplifting advice, there still seems to be times when I feel down. I can't atop thinking about what may lie ahead and how bad it could get. I'd hate for some of the Complications to occur. I'm 18 and honestly I'm scared.


24 replies

usfan51473
usfan51473 2011-03-31 00:53:42 -0500 Report

It can be scary. When I was diagnosed, I thought my world had come to an end. But I've learned through proper portion control and making sure you take 1 hour 3 x a week to exercise you can get through it. P.S. It's OK to be scared. If you're not you need to have a reality check. I've had it for about 8 years now. As long as you keep up with the tests the doctor reccomends and keep a check on your sugar, you will be fine.

ZOWLUCY
ZOWLUCY 2011-03-28 17:42:57 -0500 Report

hi Chris Gemm' s right we all have are bad days and people who dont have a chronic disease are sometimes less than understanding Althought My husband is out of the ordinary and Im glad to have him
when I was dx with my RA and osteo I got really sick and had to go thu all the test to be sure of what I had I didnt walk for about a month after that fall and it was a scary time. Yeah I got mad at the world and try to shut myself off from everybody but It was about a week after the fall maybe two I realized I was the one that was missing out then I really got mad at myself kicked my butt so to speak and starting reading all the material I could get my hands Tried some things I read to see if it would work for me and found myself saying Hey I can handlle this Hey I refuse to lose anything else
I guess what Im trying to say Keep your eye on the prize Keep up your faith Learn eveyrthing you can find what works and what doesnt Most importantly you gotta talk to your doctor Find someone you can relate with to help you thu the tuff times

oh by the way It is ok to be scared No body can fault you for that.
I have a couple of chronic diseases besides the RA and Osteo along with the diabetes Some days are more challenging than others But Im a tuff old bird and I aint giving up yet
Dont ever give up Hope this helps my young friend

Gemm
Gemm 2011-03-28 13:12:14 -0500 Report

HUGS Chris
What you are going through is a normal human cycle. Everyone gets bad days from time to time. I think though, that those of us with chronic illnesses perhaps have them more often, last a bit longer and may feel more pronounced than normal. At least that's what I have observed with myself as I look back over my history. Since my daily needs to cope with chronic illness (several) I see those cycles of good vs bad days a lot more pronounced and deeper than I used to before.

It's wonderful to have sites like this where I can come to find others who have the same problems that can relate and know what I'm going through without the need to go into details. I've found that support from others who have the same illness(es) is far superior to that I get from people who don't. Both kinds of support are needed for good quality of life. However, to deal with the day to day drain of a chronic illness really takes the support of others in the same boat who understand.

As hard as they may want to and try, those who don't have them can never really understand what we who do have chronic illnesses go through and can never really understand what it is we need for support and empathy. Too often I see others give sympathy when empathy is what is really needed. Personally, I don't need another persons pity, as I can give enough of that to myself. What I do need from others is empathy that will help me see alternatives that I may not see and can help me have the willingness, courage and drive to try the alternative and/or stick with what I need to do.

I try my best not to dwell much on the future and what "might" happen. I try to focus on today and what I need to do - JFT (just for today). That relieves me of a lot of emotional baggage that I can really smother myself in when I choose to. Fear isn't always a bad thing as long as we don't allow it to paralyze us to what we need to do. Fear can help us motivate ourselves to act and keep doing what we need to do. Remember a few acronyms for FEAR: False Evidence Appearing Real - (dang forgot the others - will check back with them if I remember them LOL)

HUGS
Gemm

dietcherry
dietcherry 2011-03-28 15:49:10 -0500 Report

Hey Gemm! That acronym for FEAR is attributed to Gary Busey-I read it in the latest Entertainment Weekly magazine! Is that where you got it? :)

jayabee52
jayabee52 2011-03-28 15:54:31 -0500 Report

I have heard this acronym for FEAR years ago. I suspect that Gary Busey borrowed it from somewhere else.

Hopieland
Hopieland 2011-03-28 11:58:54 -0500 Report

Hi Chris. You'll find a great community of real friends here who will do all they can to help you and encourage you. We've all learned a lot from the posted articles and from each other. I went straight into denial the first three years of my diagnosis. Wish I'd had this community back then! We're with ya.

realsis77
realsis77 2011-03-28 11:56:54 -0500 Report

Hi. I understand how you feel. As long as you are keeping your sugar under control you should be fine. Keep yourself under 150 because damage can occur at 150 and above. I often think of the future but I must remind myself that as long as I take my insulin and watch my food and keep my numbers under control I should be able to live a normal healthy life and so should you! Don't dewell on the negative but think on the positive! We can control this disease thank God! We just need to take it day by day and control our numbers and we should be healthy! I wish you the very best! God bless! You can do it! Hang in there and take it day by day! Remember the importance of keeping our blood sugar under control! Follow your treatment plan, visit your doctor and you will lead a full healthy life :)

MewElla
MewElla 2011-03-28 11:44:08 -0500 Report

Some days we are get down and even if we try hard to not get the dark depressive thoughts sometimes, they just come without warning and zapp us. This is normal for all of us, but what we can not do is dwell on what might happen to us, instead get through our "pity party" and then figure out what can we do to get outta of the funk and start figuring out what to eat that is good and healthy for us or what small steps can we do for exercising that day. In other words, we need to get up and out to making us healthier than we were the day before. Diabetes is a everyday work in progress and we don't continue to fight it, it can really come at us, big time.

Chris92
Chris92 2011-03-28 11:10:53 -0500 Report

Northerngal if you don't mind me asking what are the first issues you are seeing?
Feel free to ignore that if you wish I don't mean to sound rude.
Have you had spot on control all your life or have you had a bumpy ride with D?

northerngal
northerngal 2011-03-28 11:01:59 -0500 Report

Thats a scary time of life anyway, but take it one day at a time. It gets to be second nature and you do what you need to without having to think about it. Make sure you have friends who are aware of it, how to respond if there is a problem and enjoy life. There is nothing you can't do if you take some precautions. Most good people are fine with helping you when you need it, just make sure they know WHAT needs to be done. My endocrinologist told me to carry Skittles because they don't melt (too much) and it doesn't matter if they freeze. Grab as many as you need and keep the rest. Its worked for me. As for the complications, as long as you keep it under control there is no reason to expect them as a sure thing. I've had it 40yrs and am now starting to see some minor issues. I've bicycled and jogged most of my life and the freedom and clearing your mind are priceless. A lot of the old attitudes are slowly changing because they're realizing how off the mark they were. Good luck. It gets better.

Chris92
Chris92 2011-03-28 11:58:18 -0500 Report

Northerngal if you don't mind me asking what are the first issues you are seeing?
Feel free to ignore that if you wish I don't mean to sound rude.
Have you had spot on control all your life or have you had a bumpy ride with D?

Hopieland
Hopieland 2011-03-28 11:52:46 -0500 Report

Yes! How people think of D is changing. People always tell me I can't have this or that, but my nutritionist (at my local hospital) tells me I can have —in moderation— almost anything as long as I watch to balance the carbs. I had a small bowl of ice cream last night. I choose the Light variety and limit my portion to about a single scoop. I savor every bite and find it satisfies my craving. If I still want something sweet, I ignore it. If the craving, or idea lingers, I eat a good protein food. That usually stops it. As for the scary things that COULD happen. I agree they usually don't as long as we mind our "Ps & Qs"" and do what we can to stay healthy. Avoiding processed foods and other foods of no value is one thing we can do. There's no one hard line to follow. Each of us need to find what works best for us to control our BG. Being T1 or T2 isn't hopeless. The medical world is finally coming around to more sensible ways to manage D and we're now able to have much more freedom and quality of life! On the other hand, I too find myself wondering…but when that happens I have to make myself snap out of it quickly and focus on something positive in my life. D is a battle of sorts, but it CAN be won!

Guardianstone
Guardianstone 2011-03-28 01:07:53 -0500 Report

Chris,
If we had nothing but good days would we appreciate them? Thinking of them as bad moments helps, because what is a moment? Hours, minutes, seconds . . . nanoseconds? We survive with our faith whatever it may be for you. draw on that stength and use it. You are strong enough to ask for help. I am proud of you.
If you want/need to talk, I'll listen.
(hugs)
Guardian stone

Graylin Bee
Graylin Bee 2011-03-27 22:39:05 -0500 Report

The scientific and medial communities have made so much progress in understanding Diabetes and it's many possible complications. Just as is true with other medical conditions. Who knows what amazing things are on the horizon. I learned last year that I shared a medical condition of venous stassis/reflux with my Father. The treatment that corrected my problem was not available when he was first diagnosed. He dealt with over 25 years of complications that I will not face. I am confidently hopeful this will be the case with other diseases.

"LIL" Dolly
"LIL" Dolly 2011-03-27 22:07:48 -0500 Report

Dear Chris
do not be scared cuz you have alot of friends here on diabetic connect that yo can chat with & I am one of them some drop me a line anytime you want to I am there for you
Write back soon God Bless you Chris hang in there
Signed Gwen

TX gal
TX gal 2011-03-27 18:37:15 -0500 Report

Hi Chris,
I totally get where you are! I'm a long way from 18, but as a young person coming into adulthood (which is exciting and scarry itself) I too was scared of what lay ahead. While people around me saw the 'up' side, I did and do have 'down' side. Focusing on the the good things in my life, doing what I'm supposed to do as far as diabetes management (which helps to keep the glucose levels more 'normal') helps to maintain the ability to focius on the good. Things are scary, complications of all sorts can arise. I make a physical list of the 'good' things/relationships I have, so when the 'bad' times come, I give myself the OK to cry for a set period of time, then I make sure, at the end of that time, I pull my list out and review. May sound lame, but…it's worked so far! I've had T1 for 47 years. Plan and dream like you will live forever - always have a dream or goal. Some disappointments will happen, but always plan ahead!

Dev
Dev 2011-03-27 18:15:39 -0500 Report

Whenever I feel scared I tell myself that people with diabetes have a better chance to be healthier than others because they closely monitor their health regularly. and will know of future problems before they become unmanageable.

Not many non-diabetic people take care of their health in terms of the right food choices, regular doctor visits, exercise, weight control etc. They wake up only when there is a health problem.

The fear of complications is real and will haunt you now and then but if you can turn it into a motivator to live healthier today that can help get past it.

northerngal
northerngal 2011-03-28 11:07:14 -0500 Report

You sure got that right as far as the diet factor. I watch what people have in their carts in the grocery store and its scary! Sugar, fat and processed foods with the mandatory alcohol on top. I never liked beer so drinking isn't missed at all and whole grains absorb slower so not only is it better tasting, it doesn't spike the blood sugar as much.

dietcherry
dietcherry 2011-03-27 17:50:35 -0500 Report

Hello Chris! Im glad you feel comfortable in reaching out to us with your concerns. Diabetes and the related complications ARE scary! The good news is, alot of what happens to us in the future is in our hands today. Keeping our BS levels in the target range goes a looooong way in delaying and/or preventing those complications.
The bad news? Those negative, soul-crushing feelings can and do come, and they are myriad: anger, fear, depression, guilt, hopelessness, inertia, denial, and more. I find confiding in gentle and supportive people, such as the members here, keeps my spirits up. It helps knowing someones got your back!
Knowledge is power so please use all the resources available to you to arm yourself against the fear in not being fully informed.
You are still young and we have made great strides in the management of this disease in just the last quarter century; new things are being discovered and developed everyday, so there is reason to have hope that we are getting very close to a cure!!! Lots of Love! :]