Do You Study Your Disease?

NamVet - 21894
By NamVet - 21894 Latest Reply 2009-01-14 12:45:51 -0600
Started 2008-10-04 14:50:34 -0500

Do you learn, read, study Diabetes or just take your Medicines?

Tags: books

37 replies

Ani
Ani 2009-01-14 12:45:51 -0600 Report

Actually I read a few articles here and there. Its not that I dont care about my healt its just that I dont know. I feel sometimes depressed at what I learn about this illness. So I mainly learn everything I know here on this web site. And sometimes not always I read about it else where.

Lisa Ann
Lisa Ann 2008-11-08 12:15:52 -0600 Report

I try to read everything I can get my hands on. I like to explore this web site everyday (sometimes 2 or 3 times). I talk to a friend of mine who has a daughter with diabetes since age 5. She helps me alot. I'll be going to Toma's web site to download his book. I need all the help and info I can get, as I was just told about my diabtes in July 08.

Ani
Ani 2008-10-28 07:55:05 -0500 Report

Actually what I do is follow my diet, excercise take my meds and. Every now and then I pick up a magazine that I see an article about diabeties.

That is why I am thatnkfull for this site because I learn knew things everytime I log on.

queen of flirts
queen of flirts 2008-10-26 05:34:16 -0500 Report

I am here as part of my disease study. Who can give me more insight to many of my questions than my peers. And, I have done extensive research online about diabetes. The more I know the healthier I'll stay if I use the knowledge I am gaining, And, thank God, I am staying on the right track again. I took an I give up I;m tired of it all attitude for awhile and it landed me in the hospital and then rehap.And, I feel this sight is helping keep me on the right track. The insight and support my fellow diabetics give me are priceless. Like an AA program I think. Thanks Y'all.

vgarrison
vgarrison 2008-10-27 05:09:28 -0500 Report

oh queen of flirts,

I am soooo glad you found this site…it has been my saving grace…good luck on "staying on the right path" for I too know it can be difficult. GOOD LUCK!!

Vicki
Blessed Be

Pauline B
Pauline B 2008-10-19 18:12:12 -0500 Report

My career has been in healthcare food service administration where I had to often write diets for patients when a dietitian was not present. My training in foods and nutrition at Oregon State University prepared me quite well. After my divorce I began keeping company with a Type 1 gentleman, and then I really learned the practical aspects of diet calculations and how to live with the disease. There's a difference between book-learnin' and real life. Then, years later, I was diagnosed with Type 2, and treatment plans had changed, so it was back to the books again. What I might have to tell my employees to do, which was part of hospital policy (see Toma's notes) certainly did not make academic sense to me or seem to work on my body. I usually read research journals to see what might be future treatment options. An example is that in early 1990s I read in Journal of Clinical Nutrition about benefit of eating beans, such as navy or great northern white, daily. I increased the amount of beans in my diet, and felt no qualms about adding them to the school lunch menus I was writing at the time. (I was Food Service Director in a small school district at the time.)

If you read many of postings you know that besides diabetes I also have anemia and migraines that require nutritional intervention. Balancing all this requires an educated mind as well a good medical team which I am fortunate to have found.

Toma
Toma 2008-10-20 03:24:19 -0500 Report

Hi Pauline,

You must have seen much of the transition over the recent years. I am very interested in your insights as to what has changed. I am a relative new comer as I have only been diagnosed as a type 2 since February 2005. Even in that short time I have noticed a lot of advancments in nutrition science coming to light.

Dr. David Jenkins invented the Glycemic index about 20 years ago but it is just getting acceptance by mainstream medicine within the past 2 years. The concept of inflammatory and anti inflammatory foods and the connection with type 2 diabetes and other chronic diseases came from research that was released within the past 5 years and is only being talked about in very small circles such as the integrative medicine movement which is itself still quite small. With your career and training you have had a front seat to it all and from both sides of the coin. Are you able to maintain normal A1c with diet?

Pauline B
Pauline B 2008-10-20 10:38:24 -0500 Report

Yes, my A1C so far has remained steady at 5.7 as long as I eat properly. I take 1000 gm metformin 2x a day along with drugs to keep hypertension and migraines under control, and have lost 45-50 # through Look AHEAD research program that I told you about. I am not perfect, and have been letting the French fries get the best of me. My husband and I went on cruise a couple of weeks ago, and I gained only 1 1/2 pounds, but since then, I've not gained a few. But fasting blood sugars are still normal. I have to put on some warm clothes and get out in the garden before the heavy rains come. Today I made applesauce.

I read about the glycemic index about 20 years ago from Australia. There was a woman named Phyliis Krapo who was associated with it. My BF at the time, the Type1, who have epileptic seizures in the middle of the night even after having a lot of carbs at dinner. He was eating hugh glycemic foods, it turned out, though they were otherwise perfectly healthful and wholesome. Turned me into a believer of adding a little fat to the diet to slow down the metabolism. The dietitians could not be swayed.

When are you going to be in Seattle next? I still would like to meet you.

Toma
Toma 2008-10-20 12:10:20 -0500 Report

I may be in Seattle soon if all goes well at the Seattle VA hospital. They have two copies of my book that they are evaluating for inclusion in their diabetic program. I told them I was willing to travel to Seattle to work with them. Keep your fingers crossed.

When I asked Dr. Conway why it takes so long for the associations and mainstream medicine to get current he had some insightful answers. (Dr. Conway is associate editor of the Canada Diabetes Professionals Journal and has been on the standard and practices committee for the past 13 years. He said it is like trying to turn around a boat. the bigger the organization the slower it turns. There are people invested in their positions and protecting their reputations etc. We do not have to do that and because of the internet and our ability to access the best research from around the world we as diabetics are often far ahead of those who are treating us and are supposed to have the answers.

NamVet - 21894
NamVet - 21894 2008-10-09 12:33:53 -0500 Report

Gabby,
That is so true. Real (OJT), on the job training is Life! Best way is if someone has done it or is doing it and results are very good.
NamVet

Toma
Toma 2008-10-10 04:57:50 -0500 Report

Hi NamVet,

My approach to fighting type 2 diabetes is influenced strongly by Doug MacNiel who was my instructor pilot and Aircraft Commander on many of the missions I flew in Nam. He taught me back then to forget the tactics they taught me in flight school and learn what is going to keep me alive. I use the same thought process with my diabetes. The grunts had something similar; find a good point man that had already been there, learned how to avoid the booby traps and learn all you can from him.

It became very obvious to me that the strategies and weapons the ADA and VA were giving me were flawed. We are in a fight for our lives. I want the best weapons I can get my hands on. I do not care if they are the officially sanctioned weapons or tactics. Doug taught me maneuvers and strategies that would have gotten me grounded back in the world. I am trying to emulate Doug and what he taught me then. The other thing he taught me was when you find a trick that works pass it on. It may save lives.

We are all in this together. We have to watch each other’s back.

I know this may not be relevant to non combat vets but I think you will understand what I am trying to say.

NamVet - 21894
NamVet - 21894 2008-10-10 07:51:05 -0500 Report

Toma,

I do. Cover your back! Makes good sense to me. If you find that trick that works, see if it will work for others.
I understand. I listened and learned from the Old-timers!!!!
NamVet

Gabby
GabbyPA 2008-10-09 11:18:37 -0500 Report

Reading, researching and asking questions is how I have learned so much about diabetes. Just the other day, my mom was having a low, and we knew just what to do. Before I would have been lost, and more frightened.

I have learned a lot in a lot of different places, but here is where I get the pracitcality of it all. You guys help me put it together in ways that I understand. I tend to get lost in medical jargon. I like easy to understand explinations and examples. That is what is here and what I like so much. Even differing opinions are helpful, get me to thing outside my comfrot zone a bit.

Toma
Toma 2008-10-09 09:43:46 -0500 Report

Not only do I study it, it has become an obsession with me. When I was diagnosed I was dying. Necrosis was already present when I got to the emergency room at the Seattle VA. I had a very strong motivation to learn all I could. I was very frustrated with all the contradictory information, the scammers just trying to sell a miracle cure, and misinformation I found. I made it myself appointed mission to share everything I learned that actually worked. For 3 years I spent about 10-14 hours a day studying and building my websites then writing the book. I agree with KD, knowledge is power. Had I just listened to my medical team at the VA I would still be poorly controlled and on meds instead of no meds and a good A1C.

Toma
www.Diabetic-Diet-Secrets.com

vgarrison
vgarrison 2008-10-09 12:35:21 -0500 Report

Toma,

I am sure you have heard this before, but I just wanted to say how much of an insperation that you are. Not in just that you got off your meds and have a good A1c, but the fact that you took control of your disease and turned it into a positive. You have taught me so much in the short time that I have been on here, I just had to say THANK YOU!!!!

Vicki
Blessed Be

Gabby
GabbyPA 2008-10-09 15:10:15 -0500 Report

Yep, Toma is a HUGE inspiration to so many of us. He not only has done it for himself, but is so willing to help us as well. He has personally spent hours with me, and we are working together to get my numbers in better control. He is so generous and truly cares. He is a big assett to our site.

Connie4849
Connie4849 2008-10-09 15:27:18 -0500 Report

Toma, I met you on the internet at just the right moment in my life. Because of your suggestion, I'm off metformin, which really made me sick. My A1c is still at 5.6 (Sept. test). I can eat whole grain bread!!! (one or two slices a day) I'm so happy I met you and you encouraged me to get off metformin. My doctor agreed with you. My A1c was 5.5 at that time. You told me that I could control my BG with diet and exercise. I increased my exercise to 4 times per week. I modified my diet to match your book's suggestions. (I'm still not 100% compliant.) Life is so much better now. (No stomach aches or runs.)
OK, I still have some other health problems, but with my BG under control, I'm so happy. Thank you Toma. If some of you haven't read his free book. Do it. Download it free from his website.
Blessings, Connie

Connie4849
Connie4849 2008-10-09 15:30:22 -0500 Report

I forgot to say that I try to read as much as I can about diabetes because everyone in my family except for one person is diabetic. I try to share any new information with them. Sometimes they want to listen and sometimes they don't. I now understand that you can lead a horse to water but you can't make it drink. Blessings,
Connie

Anonymous
Anonymous 2008-10-09 08:39:16 -0500 Report

I gave this website to my Doctor for his other diabetics and last time I was there it was posted in the waiting room and in the room I was in so Word of Mouth is getting out. I told Doctor how much I have learned on here. About the red wine, the vinegar and the cinnamon. And he said whatever works is beneficial to me. I like that.

NamVet - 21894
NamVet - 21894 2008-10-09 08:06:43 -0500 Report

I see we all do study our Disease? Like Amy said just being on this site and answering questions, reading articles you are studying.
That is so great!
NamVet

Carol11
Carol11 2008-10-09 08:14:44 -0500 Report

This is why all of us are here on not only this site but any others we can find. Anything to get a handle lon this beast.

teddybearcub1960
teddybearcub1960 2008-10-09 08:04:12 -0500 Report

Thanks Amy,

I agree with Vicki, about giving us that Link, it was a really good article. Learned a lot of good information that I am going to use.

Thanks Again,

Jackie

Amy Tenderich
Amy Tenderich 2008-10-09 06:10:31 -0500 Report

Just the fact that you are all active here on the DC community site is a form of studying, I believe. We can learn a lot from each other!

Also, did anyone see the big New York Times story last week on Knowledge Is Power when you're a patient?

Read it here:

http://www.nytimes.com/2008/09/30/health/30pati.html

vgarrison
vgarrison 2008-10-09 07:25:35 -0500 Report

Amy,

Thanks for the link…that was an awsome report. I just wish I had a doctor that would be a "coach" instead of getting affended when I tell him that I did some research. Thank goodness I'm getting a new doctor…maybe this one will care more.

Vicki

sparkysmom
sparkysmom 2008-10-09 05:52:30 -0500 Report

I spend a lot of time on computer looking up info on all my medical problems. I also look up each new med I am given. I like to read of new treatments that I can discuss with my Drs

teddybearcub1960
teddybearcub1960 2008-10-09 05:49:30 -0500 Report

I do read the articles that are posted, and when I have extra money will buy a book on the subject.

Anonymous
Anonymous 2008-10-09 04:16:17 -0500 Report

My docotr laughs at me when he tells me something is wrong with me or my daughter because he knows I will look it up on Web MD. And if I see something in a magazine I want to talk about I bring in the article or ad. He sometimes has spent an Hour talking to me at my appoinment because he knows that we are in this together and he wants me to feel the best I can with all my problems. I really appreciate that. He is very easy to talk to.

kdroberts
kdroberts 2008-10-09 00:40:43 -0500 Report

Knowledge is power when it comes to managing your health. I spend hours every week reading studies, reports, blogs, drug info and all that kind of stuff.

Starfire - 23364
Starfire - 23364 2008-10-09 00:10:29 -0500 Report

I am finding more imformation on this diabetes from my friends on this site and I have been looking into bying books on the subject. before I never paid to much mind to it went day by day just takind my meds being more carefree then I should have been now, Now I know just how serious this is I am trying to get my BG under control with watching what I eat, and walking on my tread-mill at least 15min. day and working up to a 4 mile walk dailey.hope it helps What I really need is help with what I eat and how many times am I suppose to eat. I now make it a point to have a good breakfast What do you do ??

vgarrison
vgarrison 2008-10-04 15:29:30 -0500 Report

Since I am still very new at all of this, I read EVERYTHING I can get my hands on. I have already gotten 4 or 5 books, and when I can't sleep I read all the wonderful articles on here…

Vicki

PAT L
PAT L 2008-10-04 15:09:15 -0500 Report

I DO AN I DONT,,, I COME ACROSS SOMETHING I WILL READ IT, BUT AS LONG AS MY BS IS UNDER CONTROL I DONT DO MUCH. BUT IF SOMETHING LIKE MY BIG TOE STARTS TO HURT AT NITE THEN I WILL TRY TO FIND OUT WHY, WHEN, AN HOW TO CONTROL THE PROBLEM OR MAKE IT GO AWAY… THATS WHEN YOU NEED ANSWERS TO YOUR PROBLEM…

Debe Pendice
Debe Pendice 2008-10-04 14:58:30 -0500 Report

I DO STUDY EVERYTHING I COULD GET MY HANDS ON ABOUT DIABETES AND KIDNEY DIEASE, FEET, EYES ANYTHING CONNECTED TO IT. I ALWAYS WANT TO BE 1 OR 2 STEPS AHEAD OF MY MD. WHEN I WALK IN HIS OFFICE HE KNOW I HAVE A SHEET OF QUESTIONS. I HAVE BEEN WITH JOSLIN DIABETIC CENTER IN PITTSBURGH SINCE IT BEEN THERE. i ALWAYS WANT ANSWERS…